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DD37inOR
New Member


Date Joined Jul 2014
Total Posts : 1
   Posted 7/24/2014 12:04 PM (GMT -6)   
Good Morning! New here and thought I would post to see if I could get some feedback on what is going on with me.

Just a little information. I have had classic migraines (aura, nausea, vomiting, vertigo, light and sound sensitivity) since I was a teen only a few times a year building to about 2-3 times a month by the time I was in my late 20's. Couple years ago I started to get them about 3-4 times a month. Years ago I was taking midrin which seemed to work fine until one day doc switched me to Imitrex 100mg which worked as well but, I had to keep repeating it to have relief. None of my dr.'s ever discussed preventative meds with me and I was oblivious that was even an option until a few months ago.

2 months ago I woke up with a massive migraine which just never went away. 3 days later I developed left side facial numbness and thought I was having a stroke (it was very scary, slurred speech, lips and eyes drooping and couldnt walk straight). Went to the ER dr said that was normal migraine symptoms and all they did was give me a shot and send me home. Saw my reg dr who started me on Topamax, Propranolol and Fiorecet. We played around with Topamax dosage that just didn't work made me feel absolutely stupid. This is going on for weeks the whole time I am getting daily migraines and left side facial numbness. Dr. advised that I am have hemiplegic migraines. First time I have heard of it so of course went home a googled it and not going to lie freaked me out.Started a headache diary and then after 6 weeks of dealing with this he finally referred me to a neurologist. Which I saw on Tuesday, he took me off topamax and put me on amitriptyline and is scheduling me for an MRI and told me that this wasn't hemiplegic migraines because my whole side of my body doesn't go numb, just the left side of my face and then I get severe pain in the back of the neck and numbness around my ear and down my shoulder. He said that he was more concerned with the possibly of brain tumor because the facial numbness that I am describing is consistent with swelling which would mean that there is something in the brain. So I was just wanting to get so opinions on what the dr had to say because that freaks me out because my aunt and grandmother both have had brain tumors and I saw what they both went thru.

Thank you all for you time

JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 7/24/2014 4:19 PM (GMT -6)   
Don't cross bridges until you come to them. 30 years ago, a neurologist told me I had MS and he wanted to do a spinal tap to confirm it. I went to my family doctor, he told me the neurologist was new to the area and he was telling all my family doctor's patients that they had MS. I went to another one, my family doctor recommended a neurologist from Stanford University. Despite the myriad of symptoms, and I had some weird stuff, he said there was no evidence of MS, and before I moved out of the area, I had my first MRI, which was negative.

From a website I found this:

Hemiplegic migraine is referred to as a “migraine variant”. The word hemiplegic simply means paralysis on one side of the body. A person with hemiplegic migraine will experience a temporary weakness on one side of their body as part of their migraine attack. This can involve the face, arm or leg and be accompanied by numbness, or pins and needles. The person may experience speech difficulties, vision problems or confusion. This can be a frightening experience for the individual as these symptoms are similar to those of a stroke. This weakness may last from one hour to several days, but usually it goes within 24 hours. The head pain associated with migraine typically follows the weakness, but the headache may precede it or be absent

www.migrainetrust.org/factsheet-hemiplegic-migraine-10913

I think your Neurologist is doing the right thing, but there is no need to panic. Many tests are done to rule-out more serious problems.
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