Hi I am trying to contact the person ' my lovely' that posted the request below.
They were asking for anybody to get in touch with them that experience the same symptoms, which I do have. I'm not too good on the computer so can't do a lot of searching, as my eyes don't cope well.
' Hi there
I suffer with Chronic daily migraine, daily visual disturbance and chronic fatigue syndrome/M.E
Ive been unable to work and basically house bound for 2 years, things are extremely hard, everything in my life is hard to do.
Im here today to chat about my constant daily visual disturbance which is linked to my migraines, im trying to find anyone out there who is like me and has constant daily visual problems. My consultnat has said 'This is a rare accompaniment of migraine, visual symptoms are cortical in nature and reflect a visual processing dysfunction'.
My Consultant has described my vison as ‘my brain is not processing what im seeing’ and this all i know about my vision. Im trying desperately to find anyone who has vision problems all day everyday, this is not a normal aura, ive had vision issues constantly for 2 years now. I have been told its like vertigo vision.
My vision problems started at age 14, i had typical auras at 1st, lasting 10-30mins, brought on by lighting in shops, florescent, computers, and white walls.
Started as a blurry watery circle in visual field (classic normal aura), which spread, grew bigger within a few mins, and filled whole of vision, both eyes. This is how all vision issues started out when younger.
Over the past 2 years vision has changed from normal aura to as described below:
NOW: I have daily CONSTANT visual problems and have done for 2 years, every single day my vision is distorted.
Now Daily and constant visual problems, very hard to live with, stops me from doing everything, just as bad as the pain side of migraine. Its very difficult to describe, almost like everything is moving a mm or so, which leaves me feeling incredibly disorientated. Lasts all day, can be triggered for no reason at all, can just come on. I will wake up and a few mins later vision sets in and lasts all day long.
NOW - vision bad no matter what, with and without Migraine head pain, constant, daily for months
Triggers/difficult to do:
Lighting of any kind, natural, florescent light bulbs, dull lighting, all effect vision etc
Travelling in a car
Being in the back of a car/small spaces
Being in a lift
Using mobile phone to text
People talking too close to my face/ pointing in my face/ close up movement
Find it hard to get on a escalator when vision bad
Difficult to think, take information in, feel slow
Feel like I’m in a day dream state, vision is like a day dream
Feel very disorientated, difficult to move, walk, go out, drive
Symptoms more capable when:
Outside, on a very sunny day, in bright sunny natural lighting
Seem to be better at night, in the dark, in the evening
I would be so grateful to hear from anyone who is going through this, im told by my neurolgist thsi is a very rare form of migriane so anyone out there who has this id love to hear what tabs help u have had etc'
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo
Post Edited (My Lovely) : 2/4/2013 5:04:17 AM (GMT-7)
Many thanks x