Migraines and Cranial Sacral massage

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Coconut Bear
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Date Joined Oct 2011
Total Posts : 7
   Posted 10/24/2014 8:33 AM (GMT -7)   
My 18 year old daughter is the chronic migraine suffer since she was about 5. She has tried MANY medications and is presently on 200mg of topomax (this is a time release dose so it is once a day). Would love to get her off this medication, she has been on it for a couple of years, starting with 25mg and working up to her present dose.

She recently started going to a cranial sacral massage therapist. Has anyone had any experience with this? Positive or negative? She has said that she is sleeping a little better since she started going. Any and all comments would be appreciated.

dwadeb
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Date Joined Oct 2014
Total Posts : 5
   Posted 10/27/2014 10:45 AM (GMT -7)   
My son is 16 and has also had migraines since he was 5. We have been thru every preventative medication you can imagine....no relief. He is currently on nadalol, and noratriptyline as preventatives, they have helped more than anything, but I think he starting to get use to the meds because the migraines seem to be coming back. He goes to MHNI in Michigan, and they have helped the most of anywhere we have ever tried. Topamax made him to sick and kind of "zombified" But I have also heard about the cranial sacral massage and am interested in it. We have tried chiropractors but it didn't do much. about a year ago, I stopped all prescribed meds and did my own thing, I placed him on butterbur, magnesium, CoQ10 and riboflavin...he went 6 weeks migraine free.....I thought we were on to something, he has never went that long. Then all of a sudden one day they were back with a vengence. He will just lay on a knot in the bathroom floor screaming and vomiting...usually a trip to the ER after 24 hours will bring him relief. They give him, toradol, reglan, and benedryl thru his IV and he is knocked out instantly and wakes in an hour feeling great. Just breaks my heart as his mother to see him going thru this.

Coconut Bear
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Date Joined Oct 2011
Total Posts : 7
   Posted 10/27/2014 12:27 PM (GMT -7)   
Sounds so similar to what my daughter is going through. We have finally gotten a script for Toradol in pill form so she can at least get some sleep when she gets a really bad one. You need to be careful about not taking this too often.
Going for her 4th session of the CS massage today. From what I have researched, you need to find someone with a lot of experience about 7-10 years. There are some books to read about this which I haven't had the opportunity to read, "Your Not Sick your Thirsty" "The Bodies Many Cries For Water" "Your inner Physcisan and YOu" Also check to see where the CS massage therapist received training. I believe The Ulster Institute is the name of THE place for this. Would love to hear back from you if you decide to pursue this. From what we have been told it takes about 5-10 sessions for the CS to be effective.

Correction: it is the Upledger Institute not Ulster.

Post Edited (Coconut Bear) : 10/27/2014 3:43:50 PM (GMT-6)


dwadeb
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Date Joined Oct 2014
Total Posts : 5
   Posted 10/30/2014 11:19 AM (GMT -7)   
I have the injection TOradol to give him also, but it is such a huge needle and it has to go into the muscle and I am not a nurse, I jsut can't do it. I need to find someone I dont care much for to practice on ...lol We are heading back to Michigan next week, maybe a med change is what he needs. Let me know how the massage works....I just don't know what else to do.
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