21 y/o F chronic daily migraine & depression

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deathbymigraine
Regular Member


Date Joined Jun 2014
Total Posts : 50
   Posted 1/16/2015 7:41 PM (GMT -6)   
Hi everyone. I just posted the following in the depression forum as well. I need help tackling my powerful chronic pain and anxiety, and am hoping people can share their experiences and insight with me. To make a LONG (depressing) story short…

Spring 2013- Switch from the Lexapro I had been on for 7 months to PROZAC (Lexapro made me too tired & gave me occasional psychotic depressive episodes).. while another doctor of mine suggested I try birth control since my periods are horrible. So I began these 2 new medicines around the same time, and since then, I have had a headache EVERY SINGLE DAY for 21 MONTHS. I was born with depression & mild anxiety. As a teen this became more apparent (hence being put on Lexapro at age 19)

Fall 2013, my psych had me switch from PROZAC to ZOLOFT, when i told her I thought the Prozac had created this headache (the birth control I went off of almost immediately). The zoloft helped the headache moderately but gave me panic attacks. So at the end of 2013 i said NO to anti depressants, against my psych's wishes. Around the same time I was robbed at gun point, and still suffer from PTSD. Of course, my headaches, and psychological problems, came back with a vengeance at that point.

December 2013- submitted a leave of absence to my university, have not been in school since.

Jan 2014-today- I have tried every type of headache treatment out there. Botox, acupuncture, herbs, vitamins, injections, triptans, etc. Ive seen dozens of specialists and doctors and tried even more medications. The depression is unbearable. I truly want to be dead. I don't leave my house unless its for a doctors appt. The pain is never below 5/10, usually 6.5/10, occasionally goes up to a 9. Nothing touches it. I am just weening off of a beta blocker i tried (again) for a few weeks but it turned my toes blue and made me more depressed.

I NEED RELIEF FROM THIS HEADACHE AND DEPRESSION!!!
I have a very hard time tolerating medicine. I am a POOR SEROTONIN TRANSPORTER. I found this out after doing a genetic test last year. When I mentioned this to my psych she had no idea what to do with the info…. hello…. it means I won't be able to tolerate SSRI's for one thing (which I had been on for 14 months). I tried Cymbalta for 2 days last summer and thought I was dying so i immediately stopped that. I tried Nortriptyline for 2 weeks and became very angry and the headache became so bad I had to stop. I am so depressed that i WANT to go on anti depressants again but everything I've tried has made me feel absolutely insane or I just can't tolerate the initial side effects. Any depressed chronic migraine/headache sufferers out there? please I need serious help. I can't take it anymore.

AngelLisa
Forum Moderator


Date Joined Nov 2014
Total Posts : 2490
   Posted 1/16/2015 8:02 PM (GMT -6)   
I answered you on the depression forums.
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Fibromyalgia, COPD, Bipolar II, GAD, sleep apnea, arthralgia, insomnia, paresthesia-bilateral feet, degenerative disc disease, diastolic dysfunction, GERD, Hypertension, lumbar disc disease, urinary incontinence, Peripheral neuropathy

miss. bee
New Member


Date Joined Feb 2015
Total Posts : 5
   Posted 2/16/2015 6:03 PM (GMT -6)   
I was diagnosed with migraines. The doctor said I have had them since I was young. Well I don't remember that . Ur he said well you wouldn't because migraines cause lost of memory. In 2009 I was diagnosed with fibromyaglia. It got worse over the years and the more I think about it i use to put a heating pad on the back of my neck and on my head. In 2012 I had a fall if which I fractured my back and cause sacrum problems with a nerve. Fractured my tail bone. I just iced my back that night and went to work the next day. Need mind you I was already on pain pills but felt pain in my back. Just thought it was muscular . I was going threw a bad divorce and kept going cause I had bills. A year later when I finally got diagnosed with my back. And whipped my neck. Don't remember hitting my head on the stairs. This occurred in my basement. Then I was diagnose w post concussion syndrome and now PTSD. So I am on a lot of meds. But I get migraine every day . Since then from the fall my fibro got intensely worse. So for my migraines I take topamax daily. Sumatrphan and diflocen sodium if needed. Well the sumatrpban works well but the insurance only covers 9 pills a month. I wish I could take them every day. I have had nerve block shots and botox shots for a year until the last nerve blocks gave me three bald spots on back if my head. So in due time my primary told me to go to a radiology place to have my nerves reset. It is sulllse to lessen your migraines. They place a catheter up both nostrils and put lidacaine on them. It was a difficult procedure for me as I have anxiety . I get so depressed because of all my pain. I don't like taking antidepressants because they make me tired and bring me down. I take xanax and that helps to level me out more. I have sleep problems and have to take three at night 0.5mg each. And another during day if needed. Well k need more then that but it also helps my migraine. It has been two weeks since I had procedure done. The first day I smelled better heard better but my anxiety was everywhere and is. But then again I just started depakote which is suppose ty help migraines but makes very nervous and can t sleep . But they are red and I am allergic to red dye as it makes me hyper . Going to see doc tomorrow about my meds. But I have tried everything . The boss procedure helps a bit. I now don't wake up in morning with migraines. Now they start mid afternoon and last all day still. Going to get docs opinion tomorrow. And go over meds. Have u ever thought u may have fibro? As they can go hand n hand....but trust me I know the pain. I have to hold the top of my head sometimes just to have a conversation. I hope u will get better....or some type of relief!!

Post Edited (miss. bee) : 2/16/2015 5:29:42 PM (GMT-7)


Georgia Hunter
Veteran Member


Date Joined May 2012
Total Posts : 2116
   Posted 2/17/2015 12:16 PM (GMT -6)   
Your problem sounds like your neurotransmitter cycle is not functioning properly. If I were in your situation, I would do an experiment and not eat meat for a week. Some of us have issues with the Ornithine Cycle and that can lead to issues with tetrahydrobiopterin. I do not advocate a vegetarian lifestyle, but this temporary change could tell you if you have elevated ammonia levels. Waking up with a dry mouth is one of the symptoms of this. There is a lot more things I would try, but this is the first step.
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