I am new to this forum. I love reading about
everyone else's situations. It gives me comfort to know that i am not going crazy.
I have just recently been diagnosed with Basilar Artery Migraines. I have been getting migraines since i was 9 years old. I am now 30. I used to get SEVERE migraines in my teens and early 20's with hallucinations, aura, speech disturbances, nausea and confusion. At the time i was tested for epilepsy because I was having all of these strange visuals and not getting the actual migraine headache.
The MRI came back negative and i have just learned to live with my migraines...until recently.
I was feeling fine one day and then i had what seemed to be a seizure. I was rushed to hospital and was in this shaking, convulsing, unresponsive state for 90 minutes. 3 days later in the hospital after every test you can imagine(coming back negative) and 5 seizures later they send me home. Because there is NOTHING wrong with me!!!!!
I then spend another 8 days in bed with the migraine from hell. and no answers.
We take oursleves down to the NYC headache Clinic (which is HIGHLY reccommend) They were fabulous and diagnosed me with this rare from of Migraine BAM.
I am now on:
Naproxen and Ativan - for when I get that seizure feeling.
I am going to a sleep clinic next week to sleep over night with an EEG...to rule of the posibility of Epilepsy.
And then back to my NYC Migraine doctor to follow up.
I want to know if anyone else out there has had such severe attacks..that include falling into an unresponsive state???
I am finding my way through this puzzle slowly but surely.