First of heard of this disorder. How ever, when I have bad head pain, see dx below, it is hard for me to speak, it is in my head, mouth seems to not work so good.
My memory, short term is bad anyway from nerve damage so can not help your there.
Best I can tell you from what I have learned. I am 54, going deaf, may loose my sight in left eye.
Enjoy each day as it comes, don't look for tomorrow, it will get here soon enough, keep a journal with pictures, notes, joys and sorrows. Perhaps in years to comes it may help us to remember.
Peace and strength
Moderator - Depression
Be still and know there is Peace.
Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;