Advice needed - thanks in advance!

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Regular Member

Date Joined Aug 2010
Total Posts : 24
   Posted 2/9/2015 9:14 AM (GMT -6)   
Hi Guys,

A little background on me. I have always suffered with migraines which started to increase in frequency about June 2012. I would get stabbing migraines both with and without aura but seemed to struggle through them. Over a period of a few days back in June I was getting weird numb sensations around my body - GP referred me to a neurologist. Here is where is started.
MRI with contrast all came back clear
EEG - clear
Bloods - clear
End result - severe neurological reaction to migraines.

MS ruled out

On the MRI they noted a cranial venous malformation as an incidental find and said it was there from birth so not relevant.

But symptoms still lingered - came and went. Fast forward to about 3 months ago and symptoms came back but this time I was getting joint pain - completely new one. The only way I can describe it is deep pain in my joints/muscles around my joints. My elbows are the most painful. I also have facial numbness that seems to want to stick around (mainly left hand side) plus my sleep has gone crazy - I can fall asleep but now wake up multiple times at night. Its very strange though because my capacity to do daily tasks etc has not altered. In a nutshell I feel like I am going insane!! The only time I get a sense of relief is when I am doing physical activity it makes me focus on something other then symptoms. Facial numbness is my current symptom with intermittent hand and feet tingling. I also want to mention I got a migraine with aura about 3 weeks ago and after this settled down I was symptom free for about 2.5 weeks until symptoms came back again.

In relation to activity levels I jog 2-3 times a week and I actually get relief from this - maybe it takes my mind off my symptoms?

I got myself into such a worried state that I went back to the GP and she put me on cipramil for health anxiety. I am a reasonable logical person but this has thrown me. I have now had a full blood count covering everything plus inflammatory markers and all came back clear. The GP did briefly discuss Fibromyalgia with me and I have now been referred to a rheumatologist. I am also back with my neurologist in March for a review.

Do people that suffer with migraines have these other symptoms even without a migraine that linger and come on and off?

Now I am looking into anxiety as something that is causing symptoms but that is sending me down a completely different path! I have a young family and currently a director of a busy company which I love but this seems to be something I can't get to the bottom of. I am trying not to let it rule my life but in a nutshell I am extremely worried and scared.

Many thanks for your support

Forum Moderator

Date Joined Apr 2012
Total Posts : 7515
   Posted 2/9/2015 12:28 PM (GMT -6)   
welcome, it is possible to have these symptoms with migraines

The reason is, with complex migraine like we have, our bodies tense up waiting for the next episode, even the slightest symptom will set off.

This triggers a huge amount of stress and anxiety in our bodies, even though we are not aware of it.

It sounds like you have some neuralgia in your face, and complex migriane, I am not a doctor so I am not sure of course. I suggest you go to a teaching hospital such as John Hopkins in Md or Thomas Jefferson Univ in Phila, Pa. I went to JH.

I saw a diagnosist neurologist and he gave the the dx's listed belong, outside of the mental ones. Put me on a combo of meds, that we pretty much stick to today with my doc at TJU.

Peace and strength
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

New Member

Date Joined Feb 2015
Total Posts : 2
   Posted 2/10/2015 2:17 PM (GMT -6)   
My Mom was suffering from Migraine since I was born. The pain and Agony i cant describe here through which she had gone for years. She tried everything but they give temporary relief no cure.
Then some one suggested Reiki Healing, Sceptically She tried. Surprisingly she got instant relief. For Nine month she has taken Reiki from a Reiki Grand Master and now she is completely cured from Migraine.
she not only got cured but her energy level has also increased which was obvious to everyone.
We are grateful to the Reiki grand Master, Parul. She can be contacted through her website
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