Silent / Ocular Migraines

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New Member

Date Joined Nov 2014
Total Posts : 13
   Posted 4/4/2015 4:13 PM (GMT -6)   
I've been spending time on the allergy / asthma board, as I believe that I have sensitivities to sulfites and possible histamine intolerance.

But, another of my issues is that I have had migraine auras for the past 18 years or so.

The aura will vary. Sometimes it looks like a snowy blizzard, sometimes it is wavy lines or zig zags. Sometimes it is intense. Sometimes it is not so much. Sometimes a portion of vision will be completely blocked out for 10 or 15 minutes.

I am very blessed in that I don't have severe pain or stomach upset. Sometimes I get a mild to medium headache, but I can generally tolerate it. The other symptoms that I do have are that I often feel very spaced out and then I get very tired. If I am in a position to do so, I might take a nap.

These started when I was about 40 and I had a lot of them during peri-meno. I'm 10 years post-meno and don't have them as often. They seem to occur when there is a change in the weather, as in atmospheric pressure. (I had two of them this past week.)

I've been trying to eat better and get my exercise. We are retired people and have the time to grocery shop and cook. We don't eat in restaurants much anymore. Hopefully avoiding the food additives will help us both feel better.

Anyway, I just thought I'd share in case it helps someone else.

Forum Moderator

Date Joined Apr 2012
Total Posts : 7438
   Posted 4/9/2015 9:29 AM (GMT -6)   
Thank you for sharing
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Dolly Pantry
New Member

Date Joined Jan 2009
Total Posts : 1
   Posted 4/9/2015 5:18 PM (GMT -6)   
Hi Marilyns rings a big bell with me. From puberty until 20s suffered most debilitating and terrifying migraines - numb down one side; Alice in Wonderland syndrome where my arm would appear very long; visual distortion, nausea and.... capped off with the headache from hell for 2 or so days along with a feeling of being really poorly. I used to be absolutely terrified that I would have them and the fear ruled my life. They gradually disappeared and I started to relax but from round about the menopause onwards (now 67), I experience the ocular ones which, although unpleasant, are nothing near like the 'old' ones. However, I had 3 in immediate succession today. Usually, I get the one big round zig zag one which starts on the right and takes about 20 mins to travel to the left; then hangs around in my peripheral vision for a bit and disappears. Todays ones were all left sided and almost went, then came back with a vengeance. This time, I gave in and went to bed. Weirdly, I am on slow release beta blockers and have got more since being put on them. I reviewed what I had had today and realised I had had a rare huuuuge glass of orange juice! That bottles being chucked then! Oh yes, I used to get the speech problems years ago with the 'bad' migraines and also if having too much coffee. I get it now and again now when I feel I am on the edge of a migraine. ~(that 'am I, aren't I getting one feeling). Like some others, have always felt hypersensitivity to weather (particularly windy), too much noise gong on; fluorescent lights; sun bouncing off chrome bits of cars (noooo). Anyway, hope this helps some other people to know they are not alone.

New Member

Date Joined Apr 2015
Total Posts : 1
   Posted 4/12/2015 11:58 AM (GMT -6)   
I am a new member and auras terrify me. I feel alone and they are debilitating. Any advice is truly appreciated. I am terrified at not knowing when it will hit next.
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