Really long post but please help

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Teddtlove
Veteran Member


Date Joined Jan 2013
Total Posts : 1037
   Posted 4/9/2015 3:21 AM (GMT -6)   
This is going to be long but please help me. For the last five weeks I have had a migraine every single day. Some days are better than others and I can get by with just tylenol but they are still migraines. Light still affects me and I'm still nauseous etc. the meds in my profile are not correct so I will give you my current list. This is after two visits to the ER and several doctor visits. Amitriptyline 100mg, trokendi Rx 200, Lyrica 75 mg two a day, depakote 500 (this is temp for this headache) zomig, firocet which I do not take more than 3 days a week, tylenol number three which I am also very cautious with. I cannot take NSAIDS. I take a couple meds for disautnomia that is to help headache but my headache won't let me think of their names.

I have been given various things at the hospital also a couple other triptans frova and rizatrptan. But none of it worked.

I have tried probably a hundred non medicine things to get rid of it. I got new glasses, I have chewed ginger. I started a magnesium supplement. I tried a sinus med. I am going dairy free for three days now and will continue for two weeks. Cold packs on the head. Heat packs on the neck. Stress releasing massage lotion. Essential oil. Hydration. Sunglasses. Sleep. Wearing a mouth guard in case I'm clenching my jaws causing tension. This sounds crazy but usually works temporarily and I will explain it how it was explained to me if you guys need to hear it but giving myself brain freeze with an icee. And other things I can't think of.

My doctor is trying to get me approved for Botox but says it takes time. Does anyone have any thoughts? As you can see I'm pretty much willing to try anything. Thanks so much for reading this long post.
30 female. Sherrie, 2007 UC, 5/13 UCTD, 10/13 Fibro, Hypothyroidism, Intercostal Neuralgia, Dysautonomia, Meralgia Paresthetica, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, and Anemia.
Plaquenil, Lialda, Canasa, digestive ad lactose, Wellbutrin, Cymbalta, Lyrica, Midodrine, VSL 3DS, Rainbow light, Vit D, Humira 12/12

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 4/9/2015 7:52 AM (GMT -6)   
Try and remember when the migraines started. What changed in your life which might have triggered the migraines. There are certain foods which cause migraines. Check out the various foods which have been related to migraines. Sounds like you are taking a lot of drugs. Check with your doctor about the side effects of these drugs if they could be related to your migraines. Be careful with the amount of Tylenol you take. It has been related to liver damage.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7326
   Posted 4/12/2015 9:16 AM (GMT -6)   
Welcome to the forum.

There is a link on our resource thread at the top of the forum for a 'migraine diet'. Artifical ingrediants, red and yellow food dyes, pre processed foods, sodas, are big contributors to migraines.

I suggest you finding a neurologist at a major hospital in your area that works specifically with reocurring migraines; possibly a diagnositic specialist.

Remember any changes to life styles such as diet, will take at least 90 days to show as positive effects on the head pain.

Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Lizzibee
New Member


Date Joined Apr 2015
Total Posts : 8
   Posted 4/20/2015 5:49 PM (GMT -6)   
I suffer with really bad headaches all the time, I can't remember the last time I didn't have one. I suffered terrible migranes as a teenager, I was on oral combined pill for a few years until eventually someone immediately made me stop due to my migranes and risk of stroke. My doctors have not really helped me. It's just another constant pain that I live with, pain killers don't help me

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16044
   Posted Yesterday 12:56 PM (GMT -6)   
Have you tried pristiq? I took it for migraines for quite a while with great luck.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: entyvio / Apriso

Teddtlove
Veteran Member


Date Joined Jan 2013
Total Posts : 1037
   Posted 5/11/2015 11:27 AM (GMT -6)   
Thank you everyone. I got Botox and they found two sources of pain. I am allergic to dairy and also sensitive to progesterone that my IUD was giving off. I had it removed and am doing much better.
30 female. Sherrie, 2007 UC, 5/13 UCTD, 10/13 Fibro, Hypothyroidism, Intercostal Neuralgia, Dysautonomia, Meralgia Paresthetica, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, and Anemia.
Plaquenil, Lialda, Canasa, digestive ad lactose, Wellbutrin, Cymbalta, Lyrica, Midodrine, VSL 3DS, Rainbow light, Vit D, Humira 12/12

Clairenicole87
New Member


Date Joined May 2015
Total Posts : 4
   Posted 5/19/2015 12:12 PM (GMT -6)   
Seriously?? I'm so nervous about all this birth control now!!! I've had migraines since I was 13 and been doctoring for them for a few years now and my doctor has NEVER done a hormone panel to see if it could be my levels that way. I hadn't even thought of it until this weekend when I wanted to try something to even out my period and they recommended against it because of my arm implant and someone started talking about how their migraines were totally effected by things like that. WTH!!! I'm mad that my doctor hasn't put in this effort!!! If its worth an MRI isn't it worth a hormone panel?

Sorry for the the long rant and post hijack!!! I'm just FED UP!

Teddtlove
Veteran Member


Date Joined Jan 2013
Total Posts : 1037
   Posted 5/21/2015 5:21 AM (GMT -6)   
The hormone panel didn't determine my sensitivity to progesterone. Men's trial migraine is quite common though. Usussaly birth controll helps it. My situ ion is exceedingly rare
30 female. Sherrie, 2007 UC, 5/13 UCTD, 10/13 Fibro, Hypothyroidism, Intercostal Neuralgia, Dysautonomia, Meralgia Paresthetica, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, and Anemia.
Plaquenil, Lialda, Canasa, digestive ad lactose, Wellbutrin, Cymbalta, Lyrica, Midodrine, VSL 3DS, Rainbow light, Vit D, Humira 12/12
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, April 22, 2018 9:44 PM (GMT -6)
There are a total of 2,954,428 posts in 324,121 threads.
View Active Threads


Who's Online
This forum has 162162 registered members. Please welcome our newest member, Shohga.
277 Guest(s), 4 Registered Member(s) are currently online.  Details
FATPRO, Tim G, LisaInIndiana, KYLEb23