New HA GURU wants to do all sorts of trials I've never heard of in 25 years! Advice?

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herrenfam
New Member


Date Joined Mar 2013
Total Posts : 2
   Posted 4/23/2015 10:03 AM (GMT -6)   
I’ve have migraines since I was 15. My mother ad migraines form her mid teens,my daughter developed terrible migraines at 11, and my 17 yo some gets then 1-2 a month.

Over these past 25 years, my headaches has slowly, almost imperceptibly, increased in both duration and intensity. about the ago of 19-20 I as missing 1-5 days of work a month due to migraines. But this was back in the day where imitrex was new and they were very particular on who to give it to. The first vcouple of times I had an imitrex shot, it worked great. With 6 monts, all triptans with the exception of Frova, it’s never been covered by my insurance) They just don’t do anything for my headache. They don’t make it better, it doesn’t make it worse. Jut the same terrible pain.

I was with an HMO neurologist that basically gave me 9 fills of 90 fioricet and told me to come back when I ran out.

After going through three more jerks, I found a really great neurologist three years ago who went over my vast history and all the medications I;d tried – try-cyclic AD,beta blockers, calcium channel blockers, opioids, barbiturates, and even more I can remember. But this time my migraines had went fir 18-20 days a month, with some sort of head pain on the rest of the days. I went in to the hospital in December for a seven-week long status migainosus for a seven day stay that they only partially get rid of the headache. Then I finally switched insurance and saw the big headache specialist in Las Vegas.

The neuro listened to my story for two hours, asking very pointed questions, and basically said I had a chronic daily headache. Not a MOH, but true headaches. Because my medications out so fast because insurance only pays for a little bit of it. So I basically have no medication 2 weeks out of the month.

Due to a mixup in getting the new medications the neuro wanted me to use and a prior authorization was needed by those meds, I went from Wed – Sun with a level 7 migraine. I had nothing to take, because I was told to get off those meds.

So I went into their acute clinic two days ago, and they gave me a bunch of non-narcotic agents to get rib of the headache and sleep it off for a couple of hours.

After meeting with the neurologist again, he asked me, “so do you have migraines that go away fir a day of two WITH NO PAIN or do i have headaches all the time; but that I’m just suppressing the feelings because to me they re “mild.”

He said that daily chronic migraines (Noy MOH)are caused by the irritation of the brain and spinal cord and that I likely needed a blood patch in my epidural space. He said it’s almost a textbook case: my headaches get worse standing, sitting, and walking. But if I lay perfectly still on my pillow, I feel better.

Have any of yo have “advanced migraine techniques?” What were the pros and cons of them? I’m trying to look on the internet but can’t find much information.

I would love to hear about treatments from people who have been termed nerve inflammed and impaired and possible facet injections and neurostimulator trasnsmitters.... I feel I'm all alone out here!

Post Edited (herrenfam) : 4/23/2015 11:57:32 AM (GMT-6)


BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7355
   Posted 4/27/2015 3:55 PM (GMT -6)   
Welcome to the forum. You not alone.

I have daily crhonic head pain, that turns into migraines and clusters at least once aweek.

I am on four maint. meds. I have 3 diff dx. see below my signature. This is caused by nerve damage.

I use mindfulness and meditation to reduce the pain. I have learned to live with a pain level of 3-4 on a scale of 1-10; 10 being the highest.

In the resource thread at the top if the forum, you will find a link to a migraine diet. I urge you to check that out for you kids.

No artificial ingrediants, NO food dyes especially red and yellow. It helps to push the veggies and fruits with smoothies. I have one or too a day.

I wish you peace and strength
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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