constant daily headache

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Blimey
New Member


Date Joined May 2015
Total Posts : 2
   Posted 5/25/2015 9:44 AM (GMT -6)   
dear people!
i have been suffering by constant daily weird headache for a year, which is not migraine, i think, no light sensitivity, no phonophobia, no nausea.
the pain is always in the back of my head or in the neck, burning pain in my neck and back of the head, sometimes stabbing headache in exact point like somebody push a knife into my head. the painkillers do not really help, sometimes they can help for hours reduce the pain but never take it away. i have never had headache before in my life except when i was hangover or suffered by flu. but this is not the same kind of typical headache like those.
i went so many different doctors in the last one year but nobody knows what is it really. i got steroid/lidocain injections to my skull and to the occipital nerves. the first dose took the pain away for 4 weeks but then came back. after the first injection i also feel something like electroshocking the both sides of my head which comes from the neck through the ears into my eyes. i did not feel this electroshocking before "only" the stabbing headache and the nerves feel like they have been set on fire or something like nails are clawing my scalp. i got drugs like meloxicam but it made intense stomach ache and i got sirdalud but it made crazy feelings like some kind of amphetamin. i gave up to take them. then i got antidepressant but it also made crazy feelings so i stopped it. i got tegretol i have been take it for two weeks no side effects but i do not feel any change.
i went to chiros did not really help, i went massage sometimes helped but sometimes made it worse...
i went for acupuncture first time really helped i was so happy but the pain came back after three weeks i went there again bit it did not help i went every 10 days but did not help but then after some months i went there again and it helped again. so weird! is not it? the same things sometimes help sometimes make worse?!
three times in the last year the pain and all symptoms went away without any intervention or treatment, i do not know what happend or what did i do i think nothing special nothing really different. i was happy and i did everything well like work, hobbies... the pain came back when i went to the gym or did some kind of pysichal efforts. i gave up to use weights i just do therapeutic exercise and swimming but they are also very different effects on me sometimes help sometimes make it worse. i was on MR, CT, they told me nothing is wrong with my brain, but i have discopathia and very little problems with vertebral disk but no hernia, no tumour, no pressure on nerve roots. i always was anxious person but this pain made me really crazy, furious i can not do anything, i spend 10-12 hours in the bed because the only time when i do not feel the pain when i sleep, i have lost friends, i make sick and tired my girlfriend, my family, i have no idea what should i do, sometimes i really want to kill myself but of course i cant do it. i go to the bed with pain i wake up every morning with this pain.
(i used to smoke 4-5 cigarettes everyday but nowadays iam a chain smoker because of frustration makes me mad. if the pain gone i dont smoke so i really use that crap for my bad feelings.)
if anyone can give me an advice, please!!!

(sorry for my spelling mistakes and poor english)

Post Edited (Blimey) : 5/25/2015 9:20:16 AM (GMT-6)


BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7515
   Posted 5/26/2015 11:07 AM (GMT -6)   
the thing with chiros and accupuncture is you must keep going on a tight schedule for months to get relief. I went for a year for accup and it did help. I stopped 2 mos later pain was back. Can not afford the treatments.

Went to a chiro with neurological backround, excellant doc. Was almost pain free for 2yrs. Ins stopped covering chiros. Pain returned 6mos later.

I now do yoga for back/neck strength and am on combo of maint meds. Pain level is 2-4 most days.

Went to John Hopkins in Md for a correct diagnosis. Saw a diagnosistic specialist in neurology.

Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Blimey
New Member


Date Joined May 2015
Total Posts : 2
   Posted 5/26/2015 4:11 PM (GMT -6)   
thanx for the answer trina! so, you mean i must be persevere. probably i heard too much wonderful stories like "i went to chiro and he/she fixed me in 30 min and i was pain free and happy again" maybe i expected some kind of wonderful cure. right okay i will be persevere. today i went to the spa there are some masseurs and one of them examined me and he said my muscles are really okay no pressure, no knots, no trigger points just very very little muscletighten in the left side of the neck near to C1 but it can not make this kind of strong headache. two days ago i was in my own bath tub i really felt that kind of stabbing type headache and i impulsively started to push that point on my skull with something and i felt uhhhh i found something very sore spot im just pushed it pushed it very strong and the pain started to dispersed into my forehead and everywhere both sides of my head it was so intense but then i felt the relief. today it is happened again i don't know what is it really or what i did but helps more than any painkiller. now there is a dent on my bald head which is very sore spot now but the pain level reduced appreciably. there must be something.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7515
   Posted 5/27/2015 1:06 PM (GMT -6)   
I would go back to the chiro, one that takes their own xrays....
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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