On and off migraine for a week.

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New Member

Date Joined Nov 2013
Total Posts : 7
   Posted 6/7/2015 4:47 PM (GMT -6)   
Last summer I was diagnosed with Migraines. I mainly was having an episode of Status Migrainosus, which was not fun at all. I ended up being hospitalized through a headache clinic, did IV DHE and Compazine treatment which broke the cycle.

Since then I was fairly headache free, I would get them once every few weeks, but nothing as bad. I was get like 8 out of 10 headaches daily, but then I was getting like 3 out of 10.

Now suddenly in the last few weeks I've had a few break throughs that have been worse, and we dealt with those okay. But then this past week, I've had a bad migraine every single day for a week. I've done my Comapzine a couple days, trying to stay away from my limit, I did a comapzine bridge, I did a DHE nasal spray. I also have DHE injections that I can use if it gets worse.

I've been on 75mg Topamax once a day, Magnesium, and Butterbur as preventatives per my Nurse Practitioner at the headache center I go too. And that has been working fine with little issues, I mean I went a month with no headaches early this year.

I called her on Friday, we upped my dose of Topamax to 100mg total a day (50mg twice a day) and she said to try that and see what happens and if it doesn't work to call back and we can go from there.

But more my question is, at what point should I say the increase in dose isn't helping and I should call back and talk to her about doing something else? I've been in pain for a week, mostly just trying to tough it out because otherwise I would be at my limits of my medications for the week. And I'm miserable, its bringing back a lot of memories of when I was like this for a couple years, and its just emotionally as well as physically and mentally hard on me. I thought I was finally getting better, and then this. I have plans for next weekend, that now I'm unsure about.

Thanks for any help that anyone can offer.

Forum Moderator

Date Joined Apr 2012
Total Posts : 7515
   Posted 6/8/2015 9:04 AM (GMT -6)   
Sorry for your pain, it is a guessing game.

I am a bit diff as I have nerve damage to contend with and am up to 225mg topomax a day with 3 other meds.

I also am on a whole food diet, practically vegatarian, nothing artificial. NO prosessed foods. No food dyes especially red and yellow. NO soda. Lots of water.

There is a migriane diet link in the resource thread if you would like to check it out.

I wish you well.
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Veteran Member

Date Joined Sep 2014
Total Posts : 534
   Posted 6/8/2015 1:25 PM (GMT -6)   
Pay attention to what you are doing different that might cause the migraines. If you are eating something different or have been doing something different in your life which might result in the migraines. Important to control stress and get proper sleep. Make sure you have a clean environment. Have seen stories of people getting sick because of too much mold in the house they live in. Be aware of everything you put in your body. Maybe you can figure it out.

Veteran Member

Date Joined Feb 2014
Total Posts : 1118
   Posted 6/10/2015 6:01 AM (GMT -6)   
I would call your doc back and ask her. How long should I give this increase to work/help me before looking into other options? When I have an increase in meds or change my doc always says "try this and call me in x number of weeks if it's not working"

Hope you find some relief soon!

Many challenges, lots I am thankful for.

spina bifida dx age 20, chronic back pain (surgery: tethered spinal cord, spinal fluid leak), neurogenic bladder (augment w/ stoma, sling-2015), chronic migraine, TMJ, bulging discs etc C3-C6, neurogenic bowel, colostomy-2015, bipolar type 2, anxiety, fibromyalgia, severe nausea, hysterectomy+salpingo-oophorectomy 2015, and more. Gonna be ok!
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