Persistent migraine aura without infarction (PMA)? Palinopsia?

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Kal123
New Member


Date Joined Feb 2015
Total Posts : 2
   Posted 7/7/2015 8:12 AM (GMT -6)   
Hi everyone,

I am a 22 year old woman with endometriosis (gynaecological disease)

A year ago my endo got worse and I began getting neurological symptoms. I began seeing lights, outlines of objects, halos, shimmering dots, blobs of colour etc...I can look at a sign and then keep seeing multiples of the sign everywhere I look (palinopsia), often in bright colours. I also get tinnitus, confusion, nausea, dizziness, pins and needles etc

I've had an MRI, CT and EEG done, all normal.

A neurologist today said I don't have anything wrong with me, his colleague thinks I have a migraine aura. A specialist migraine doctor says I have a migraine variant (PMA) and could be on the 'epilepsy spectrum' but this guy today say nope, nothing he can do to help me, it will just go away one day, but maybe it wont.

Needless to say I left the office upset and furious. I'm being denied hormone treatment to manage my endometriosis because of stroke risk, but now I'm being told I don't have migraine aura.


Im writing to ask if anyone else had this? Are you on any medication? How did you get treatment and a diagnosis?

I am desperate for answers, thank you all!

K x

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7357
   Posted 7/7/2015 8:50 AM (GMT -6)   
K,

welcome to the forum.

Ugh, I can't tell you how many times Neuro have walked out of their office on me, say nope can't help you! Arrgghh. I feel your pain. All my tests EEGs MRI/s CT etc.... all came back normal except for frontal lobe. That was abnormal

I finally went to John Hopkins in Md and say a Migraine diagnostic specialist in 2009. See my list of med dx in my signature. He put me on a cocktail of meds 4 to maintain my pain and aura.

I take 100mg of Zinc for tinnitus, works.

I know see a Neuro in Phila. Pa at Thomas Jefferson Univ. I will never be pain free, the expectation is to keep the pain down to a 2-4 daily. Having "reverse Trigeminal Neuraglia" is a ***** because no one is studying it, there are not grants out there for it and most doc in the studies don't care, your not in perameters, tough doodies.

So as you can tell, my suggestion is a good Neuro hospital near you, try to get a diagnostic specialist. Put on your armour, You are a warrior! Fight for your right for an answer. May not be what you want, however, you may be able to live with it.

I wish you peace and comfort.
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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