Posted 7/7/2015 8:12 AM (GMT -6)
I am a 22 year old woman with endometriosis (gynaecological disease)
A year ago my endo got worse and I began getting neurological symptoms. I began seeing lights, outlines of objects, halos, shimmering dots, blobs of colour etc...I can look at a sign and then keep seeing multiples of the sign everywhere I look (palinopsia), often in bright colours. I also get tinnitus, confusion, nausea, dizziness, pins and needles etc
I've had an MRI, CT and EEG done, all normal.
A neurologist today said I don't have anything wrong with me, his colleague thinks I have a migraine aura. A specialist migraine doctor says I have a migraine variant (PMA) and could be on the 'epilepsy spectrum' but this guy today say nope, nothing he can do to help me, it will just go away one day, but maybe it wont.
Needless to say I left the office upset and furious. I'm being denied hormone treatment to manage my endometriosis because of stroke risk, but now I'm being told I don't have migraine aura.
Im writing to ask if anyone else had this? Are you on any medication? How did you get treatment and a diagnosis?
I am desperate for answers, thank you all!