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Julia H
Regular Member


Date Joined May 2005
Total Posts : 76
   Posted 10/18/2005 8:33 AM (GMT -7)   
Has anyone taken topamax to help prevent their migraines? My neurologist just prescribed this and I've only taken a few nights. He has me taking 25mg a night titrating up to 100mg over the course of four weeks. Does it make you feel really really drowsy? I don't know if I'm still recovering from being in the hospital or the drug?
Julia
Lupus, Raynaud's, Chronic Urticaria, Thrombocytopenia 2003, Small Fiber Neuropathy 2005
Meds:
Plaquenil, Methotrexate, Folic Acid, Prednisone, Cymbalta, Nifedical, Celebrex, Arava, Neurontin


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 10/18/2005 9:11 AM (GMT -7)   

Yes, Topamax is a very popular preventative medication. When I first started taking it (actually both times) it made me very drowsy in the beginning. I wanted to tell you too...make sure that you take it VERY VERY SLOWLY....and DO NOT increase it too quickly....and regardless of what the doctor says...if you take 25 mgs and then increase to the next dosage and you feel like you have a side effect you don't like or something feels off #1 don't stop taking it without talking to your doctor and #2 if you have to step down and stay at 25 a little longer do that...just don't jump up too fast. A lot of people and doctors even will make that mistake all too often.

I took Topamax twice. The first time my doctor was an idiot and made that mistake and I had side effects that were just too much...I was at 100mg and even 200+mg way too fast and there were some things that I just couldn't deal with. And now, I am at 250mg and I LOVE TOPAMAX AND WOULD NOT GET OFF IT FOR ANYTHING....AND I DO MEAN ANYTHING!!!

Now, I will tell you that I did have side effects in the beginning. I was exhausted in the beginning, I went to work and had to come straight home and go straight to bed (but I'm not sure if that was migraines, Inderal or Topamax...its one of those things, which came first...the chicken or the egg???) anyway, I also had tingling in my arms and legs...I also had a little bit of, as I like to call it "Dopamax" syndrome where I would be in the middle of a sentence and lose a word...but now that I have been on Topamax for a while my headaches have decreased in intensity and frequency (even through some horrible things I have been going through) I have also lost 30lbs!!!

Anyway, I am sure a few people are going to post both good and bad experiences and you are going to have to weigh your options here- of course everyone's experiences are going to vary as are yours. Just be careful and keep in touch with your doctor. Most important, keep a record of how you feel that way you can truly see how this is working for you.

 

I just noticed something...you are already taking Neurontin??? are you going to be taking this with that????

Sara


Sara-Migraine/Headache Forum Moderator
 
Thanks for Visiting HealingWell.com


Julia H
Regular Member


Date Joined May 2005
Total Posts : 76
   Posted 10/18/2005 9:28 AM (GMT -7)   
Yes, I will be taking the neurotin with it I think. I have neuropathy so I already have constant tingling in my feet. And now I'm getting tingling in my cheeks which I bet is the topamax. I got some coffee this morning for the drowsiness. I just hope I never have a headache like that again or need to be hospitalized again.
Julia
Lupus, Raynaud's, Chronic Urticaria, Thrombocytopenia 2003, Small Fiber Neuropathy 2005
Meds:
Plaquenil, Methotrexate, Folic Acid, Prednisone, Cymbalta, Nifedical, Celebrex, Arava, Neurontin, Topamax, Potassium


tymaboy
Regular Member


Date Joined Aug 2005
Total Posts : 59
   Posted 10/18/2005 11:49 AM (GMT -7)   
I have been on Topamax for about 3-4 months. I really like it. I found that if I stayed at a dose for about 2 weeks before upping it, it worked well for me. The side effects that drove me nuts where- my teeth & gums hurt every time I upped my dose, stuttering & you know how you feel drugged up & out of it on cold meds that is how I felt when I upped my Topamax. My Dr told me to stop at the dose that works for me so I am only at 75mg. I have not experienced the weight loss that others have talked about, but I still would not stop taking the Topamax seeing that it is one of the fewer drugs that I have tried that has not made me gain weight.

lawyerlee
New Member


Date Joined Oct 2005
Total Posts : 12
   Posted 10/18/2005 1:24 PM (GMT -7)   
I am on 200 mg of Topamax per day - 100 in the am and 100 before bed. My main side effects have been related to short-term memory and weight loss, which is great because I need to lose weight. I really like it. It hasn't been a miracle cure or anything, but now that I'm taking it with Neurontin (another antiseizure med), 500 mg of Magnesium, and Skelaxin, to deal with some problems in my neck, things are working out pretty good for me. I was on it for about 6 months all by itself and didn't see any results, but when combined with these other drugs, it works well for me.

Diana

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 10/18/2005 7:50 PM (GMT -7)   

Diana-

Are you taking Topamax and Neurontin both for migraine/headache prevention? (and no other reason?)

Sara


Sara-Migraine/Headache Forum Moderator
 
Thanks for Visiting HealingWell.com


Julia H
Regular Member


Date Joined May 2005
Total Posts : 76
   Posted 10/18/2005 11:45 PM (GMT -7)   
No, I am taking Topamax for Migraine Prevention, and Neurontin for neuropathy pain from Lupus nerve damage.
Julia
Lupus, Raynaud's, Chronic Urticaria, Thrombocytopenia 2003, Small Fiber Neuropathy 2005
Meds:
Plaquenil, Methotrexate, Folic Acid, Prednisone, Cymbalta, Nifedical, Celebrex, Arava, Neurontin, Topamax, Potassium


Jen264
New Member


Date Joined Oct 2005
Total Posts : 4
   Posted 10/19/2005 4:08 PM (GMT -7)   
I started Topamax this Summer I am up to 100 mg (I also only weight 104 lbs). I was taking it 50mg in the am and 50mg at night but the side effect of concentration and recall was interfering so much that I began taking 50mg late in the day...around 5pm and the second 50mg around 10 pm. I am not sure that my doc would approve but it has helped my concentration levels. This side effect has not gone away despite the fact that I have been taking 100mg for at least 3 months. As far as headache relief...it has helped a great deal...prior to starting topamax I was using Zomig 5 to 6 days a week (I had headaches 5 to 6 days a week) and I was taking 5 to 10 mg at a time. I am now worried about long term effects that the Zomig has had on my retinas. Research on lab mice showed toxic levels accumilated in their retinas after long term exposure. I have been taking Zomig since it first hit the market several years ago...Every thing else had stopped working for me.

kmack
New Member


Date Joined Oct 2005
Total Posts : 1
   Posted 10/25/2005 10:31 AM (GMT -7)   

I have been taking topamax or some other seizure drug to prevent my hemiplegic migraines.  I was diagnosed @ Shands Hospital in Gainesville and the neurologist said that Topamax was pretty much standard for treating hemiplegic migraines.                   

The first time I started the meds I slept for a week.  I adjusted to the meds after that...The topamax made my blood pressure extremely low and I almost passed out every time I stood up.  Then again, I was also on heavy duty opiates...so it could have been the combination.  I have tried at least 5 different types of seizure drugs, they seem to work initially and then wear off after about 6 months.

I'm now on verapamil, Kepra, to prevent the migraines and hemiplegia and oxycontin to deal with the pain.  Good Luck

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