Posted 8/6/2015 11:20 AM (GMT -6)
I have a question that I need answers to. I get this "event" often. I'll try to describe it and tell you more. I know it's starting because I get a sign. the sign is that I fee a beat or pulse in my right ear. Then my vision starts to get "wavy" (can't explain this) Then at the same time my left arm starts to feel heavy, tingly, throbby. This lasts about 1 hour every single t ime. It's debilitating cause I cant focus clearly.
I'm a teacher and thankfully on summer vacation right now. But it has happened while I'm with the kids. I can hide it and keep going and no one would know. So, my MS dr says it paradoxysmal symptoms (nerve cell hitting scar tissue) so she put me on Tegretol. I started with 100 mg 2x day. The
tegretol worked for about 2 weeks then they started again. So she upped the med. this keeps ;happeningg. Works for awhile, then stops. I'm was up to 850 mg a day.
Three weeks ago I had a 72 hour EEG at home. It was normal (no seizure activity) Which means it's probably what she said. She wanted me to see a seizure specialist so i did. I went in hospital Veeg.. I had 3 events but eeg came up normal again. My dr put me on tegretol again but 12oo mg a day
Well, my question is : if it's not seizures, then what is it?? Has anyone exwperienced anyting like this? I need to get this under control. BTW.. last night it happened 4am, 7am and 10 am. Please let me know if anyone has had anything like this? I can't be the only one in the entire world with these symptoms. (( TIA