At my wits end - crying while typing this - sick of constant auras

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Ambiance
New Member


Date Joined Aug 2015
Total Posts : 4
   Posted 8/12/2015 4:49 PM (GMT -6)   
I don't know what to do anymore.

I got my first aura about 11 years ago after my daughter was born. I would get auras every month around my cycle - numbness, vision problems, memory problems (could not remember my phone number or name). I was able to deal with it as it only happened once a month - there was a pattern.

I had an MRI done, all normal.

Soon, the migraines and auras dissipated to maybe once every 6 months. Still scary when it happened, but I was thrilled as it did not affect my life too much.

In March of this year, I had a D&C for heavy bleeding. That is where I see the point of no return. After that, I have been having auras once every few days (sometimes multiple times a day). A migraine doesn't always follow, but the auras scare me to death every time they happen. I cannot see anything. I am losing days of my life just panicking over when the next aura is going to happen. There seems to be no set pattern anymore. They happen whenever, and always sends me into a panic attack.

I can deal with the pain of a migraine, but I cannot live with this constant fear of going blind (yes, it feels like I simply can't see anything when it happens.)

Had an MRI and and MRA done in May, both normal.

Doctor put me on Ativan for anxiety - not helping with the auras at all, barely helping with the anxiety. I literally don't know what to do anymore. I am not living my life. I have an 11 year old and twin 4 year old boys - I fear taking them anywhere in case I get an aura while driving.

Isn't there any help out there for this? I feel so down and desperate and depressed over this.

I am just so sad.
cry

Buster1
Regular Member


Date Joined Apr 2015
Total Posts : 36
   Posted 8/13/2015 12:10 AM (GMT -6)   
Mine are related to my low testosterone as best as we can find. Please please have your hormones checked as I TRUELY believe that is the issue for me.

flyingmonarch
New Member


Date Joined Aug 2015
Total Posts : 2
   Posted 8/13/2015 12:30 AM (GMT -6)   
I know how you feel, driving when the aura hits is life threatening. I have gotten them for many years and for years I also panicked and reached for drugs to help. Just breath. I always fought what's going to happen. 30 minutes after the aura the pain begins and can last for several days. With your kids its probably hard to take a break, but sitting down and acknowledging what's happening, relax, and accept that you can't change the neurological part of this, but you can change you reaction.

Ok, here is the aura again, what is it telling me? In the last 2 hours what did I eat? How did I feel? Evaluate you situation...you might find an answer.
Breath. Deep stomach breathing is the best.
How we react is key. If you panic Xanax is better than Ativan.
Look at your diet closely, sometimes our food causes migraines. Also over the counter meds contain preservatives that can cause migraines. My instant coffee was a culprit. Anything with corn syrup....the list goes on.

I live on a very strict diet: nothing processed nothing preserved. Total pain in the ass and it doesn't totally stop the migraines, but it has helped.

I was down with one heck of a headache today and your going to think I'm out of my mind, but I had my hair dyed and afterwards my scalp itched and I felt really anxious. I rinsed my hair with Chamomile to calm my scalp and hopefully lighten my hair. The scalp felt better, but I have to wonder about the chemicals in the hair dye? I have found headaches to be different from anxiety, stress, overtired, sleep apnea, soy, etc. But the headache today was brought on my chemicals.

If you monitor your actions, what you eat, and when you just have aura's it might help solve resolve some of your triggers.

Hope this helps.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7483
   Posted 8/13/2015 10:46 AM (GMT -6)   
I get them every morning [see my sign. for diagnosis]

They were all day long. I am hypo thyroid. when I went on thyroid meds, they decreased to just in am for about 1/2 hour after waking up.

You wont go blind from them.

Have your horomones and thyroid checked. could be both or one.

Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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