29 month headache can't take it anymore

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Regular Member

Date Joined Jun 2014
Total Posts : 50
   Posted 9/10/2015 12:18 PM (GMT -6)   
Can't retype something I already did. See here:

22 y/o. Slowly dying. Can't imagine getting myself to Mayo Clinic which everyone tells me is my last option. Easy for them to say it's no problem getting there. I don't see any of the doctors helping me there. I don't see anything good coming out of going besides crossing that off my list of options. Im done.

Forum Moderator

Date Joined Apr 2012
Total Posts : 7291
   Posted 9/12/2015 8:16 PM (GMT -6)   
Never never give up Hope!

I ended up driving hours to John Hopkins in MD., I received the correct diagnosis., I am not pain free. However, my daily pain in reduced to 3-4 on that scale of 1-10, on a daily basis.

NO, it is not easy, it is darn hard. Who is worth it more?

Ask the doctor for tylenol 3 or other pain meds to get you through the trip. Take a train if you have to, plane whatever.



You may have been on these sites, perhaps not. Either way I suggest you visit them and try to get some support and new treatment. Mayo clinic is NOT the ONLY answer.

Peace and strength
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

New Member

Date Joined Oct 2015
Total Posts : 11
   Posted 10/8/2015 2:07 PM (GMT -6)   
I feel for you. Has anyone talked about jammed atlas and occipital condyles? See http://erikdalton.com/occipital-neuralgia-headaches-addressing-oa-joint/ If you have not been to a craniosacral therapist, you should find one. I have been taught an A-O release by a DC that is different from the CST approach. Then there's a mention on this site: http://www.upcspine.com/anatomy2.htm of a different way for them to jam.

I will try to paste on an old article with symptoms for A-O.
Hope this helps. These things are usually too subtle for the avg Md to see. I have learned that when someone comes in for a massage with a long term headache, esp if it hurts worse if they laugh, it's time to do the A-O release. They are generally very happy afterwards. Also I tell them that I went from my DC doing it, to getting my husband to do it, to just using a chair arm to do my own.

(AKA Jugular Decompression, Condylar Decompression)

Upledger (1) describes a procedure for disengaging the occipital condyles from being jammed between the articular surfaces of the atlas, allowing the occipital condyles to spread, thus decompressing the jugular foramen and normalizing flow of cerebrospinal fluid through the foramen magnum. Goodheart incorporated this procedure into A.K.
SYMPTOMS & INDICATIONS: Dysfunction of Cranial nerves IX through XI may be caused by cranial base dysfunction and relieved by its correction:
Loss of gag reflex (IX, X), dysphagia (X), loss of taste in the posterior third of the mouth (IX), increased salivation (IX), hoarseness, aphonia or dysphonia, pharyngeal or laryngeal spasms (X), esophageal spasms (X), cardiospasm (X), pylorospasm (X),
uvula deviation (X), paralysis or assymetry of soft palate (X), cough (X), gastric dysfunction (X), cardiac arrhythmias (X), respiratory disorders (X), SCM or trapezius malfunction (XI). Upledger also lists headache, “hyperkinetic” behavior in children, respiratory distress in newborns. Frymann lists “nervous,” gi, cardio respiratory symptoms in infants.
A.K. INDICATIONS: Any microfixation of the occiput and atlas may be helped by this procedure, for instance: positive rocker motion challenge, positive challenge for occiput fixation, positive test for “pitch”, “pitch-turn” or “yaw 1” patterns.

Patient supine. Dr. cups the base of the occiput in his hands with straight fingers, flexed on the hand to support the atlas. Weight of patient’s head and neck rests on fingertips. This gentle anterior pressure on the atlas allows the occiput to float back in relation to the atlas. Hold until occipital freedom is felt, 1-4 minutes.

After the occiput has become free on the atlas, Upledger adds a gentle spreading pressure on the occiput with the hypothenar eminences. The intention is to release compression and tensions around the foramen magnum and jugular foramina.

References for Condylar Decompression Technique
1. Upledger, John E., & Jon D. Vredevoogd, Craniosacral Therapy, Eastland Press, Chicago, 1983
2. Goodheart, George J., 1990-1991 Applied Kinesiology Workshop Procedure Manual, pages 74-76.
3. Leaf, David, Applied Kinesiology Flowchart Manual, 2nd Edition, page SP-30.

Requested rating: Approved.
Rater, Kathy Conable

New Member

Date Joined Oct 2015
Total Posts : 11
   Posted 10/8/2015 2:27 PM (GMT -6)   
Oh, and the other thing that can cause such an endless headache is dental infection. I have a mycoplasma type the the dentists know nothing about it and can't seem to see it on Xrays. Mine's in the lower jaw, but for real headaches it needs to be in the upper jaw, the maxilla bone I'd guess. But go for a really really good Craniosacral practitioner first, as that way you get evaluation and treatment all in one session. Dealing with mycoplasmas is slow. Takes me about 3-4 days on goldenseal to feel any relief, and works better after a week or two. Plus all the things that make calcium work right, plus calcium itself.

New Member

Date Joined Aug 2015
Total Posts : 3
   Posted 10/9/2015 6:43 PM (GMT -6)   
Hello everyone,

I just want to say that I have been migraine free for a month. I have struggled with migraines since I was 13 and will soon be 38. I have been on every med, gone to the ER many times for a cocktail that was only temporary, had acupuncture, been to the chiropractor, see a TMJ specialist, and nothing seemed to work. I would like to tell you that after a recent visit with a physician who also studied German medicine, I haven't had a migraine, woke up with a headache, had anxiety or depression. I am so thankful that I am able to live life again.


The researcher
New Member

Date Joined Oct 2015
Total Posts : 1
   Posted 10/15/2015 5:08 PM (GMT -6)   
My wife, Robin, calls me the Researcher. Robin woke up on March 9th, 2012 with a headache on the right side of her head. Up to that point she would have a migraine that would go away with taking a Maxalt or Imitrex. This headache has not gone away. After MANY specialist visits and extensive testing to root out the cause she still has it.

Robin had the Reed Procedure and now does not have to take Nucynta but still has the headache.

I am beginning my research anew to find out more information I may have overlooked or any new developments.
This life here in the world is not permanent. A better life awaits
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