Battling two years

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New Member

Date Joined Oct 2015
Total Posts : 1
   Posted 10/7/2015 8:50 AM (GMT -6)   
ever since October 2013 i was diagnosed with new daily and it sucks. i am currently on gabipentin, however now it doesn't seem to be helping after two years. Topax i have a bad reactions too, acupuncture, massages, biofeedback, nerve blocks doesn't help. ive tried everything. since a week ago every day the pain has been getting worse minus the meds i seem to take nothing helps, not even the meds they gave me for it to help with pain. i need help! ive called my doctor but she didn't really help. im running out of ideas. anyone have this problem?

Forum Moderator

Date Joined Apr 2012
Total Posts : 7438
   Posted 10/7/2015 10:36 AM (GMT -6)   
Are you seeing a neurologist? or a GP? I suggest a Neuro

I am on a combo of meds Topomax 225mg Propanolo 120mg
pain level usually stays around a 3-5 most days.

I do have an appointment at the Jeff Univ Headache center in Phila on 10/14. My Neuro passed away and I can not get a new doc to see me.

Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

New Member

Date Joined Oct 2015
Total Posts : 14
   Posted 10/7/2015 3:02 PM (GMT -6)   
Hi Morgan,

I am experiencing something similar. I was diagnosed with new daily persistent headache and migraine October 2012 and have had constant, 24/7 headaches that increase in intensity daily. I've tried every medication they've prescribed. Even Topamax with Propranolol. But has helped either. I've tried nerve blocks, DHE hospital stays, Botox, acupuncture, chiropractor, physical therapy, massages. Nothing seems to be helping.

I've been regularly following-up with Johns Hopkins in Maryland. They recently prescribed Namenda, which is an Alzheimer's medication to see if this will break the constant 24/7 cycle. I've only been on it for 2 weeks, so I'm crossing my fingers.

Have you tried any other medications? I know they normally prescribe the usual anti-seizure, blood pressure, anti-depressants to treat the migraines. I've been on all of them.

You mentioned that the gabipentin is now not working. Has it worked for you in the past?

New Member

Date Joined Aug 2015
Total Posts : 3
   Posted 10/9/2015 7:29 PM (GMT -6)   
Hello everyone,

I just want to say that I have been migraine free for a month. I have struggled with migraines since I was 13 and will soon be 38. I have been on every med, gone to the ER many times for a cocktail that was only temporary, had acupuncture, been to the chiropractor, see a TMJ specialist, and nothing seemed to work. I would like to tell you that after a recent visit with a physician who also studied German medicine, I haven't had a migraine, woke up with a headache, had anxiety or depression. I am so thankful that I am able to live life again.


Post Edited (jjsa2015) : 10/9/2015 6:41:57 PM (GMT-6)

New Member

Date Joined Oct 2016
Total Posts : 7
   Posted 10/8/2016 9:43 PM (GMT -6)   
What did the physican do to rid you of the migraine, anxiety, depression? My 18 year old daughter suffers from all of that? She sufferes constantly-her quality of life is suffering.


New Member

Date Joined Oct 2016
Total Posts : 8
   Posted 10/9/2016 9:52 PM (GMT -6)   
Hello, i know what migraines are like, I'm an 18 year old girl who been hospitalized for months with migraines, i been on every migraine medications including this one, and not 1 is working or been helping, When i go to the hospital for a migraine, i always become hospitalized, migraines suck for me!! The doctors here told me that they haven't seen a person suffer from migraines like me... I might be needing brain surgery because i also have a weak blood vessel, but that isn't what is causing my migraines... I been suffering from migraines since i was 6 years old... The symptoms i get are: Blurry vision, sensitivity to light, sound and noise, vomiting, nausea, sometimes dizziness, and fainting, and there are a lot more... I get migraines every single day and in a month, I get 28 migraines..
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