New here and needing life help!

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raser13
New Member


Date Joined Dec 2015
Total Posts : 2
   Posted 12/1/2015 11:45 AM (GMT -6)   
Let me give you a quick run down on me. I've had sever chronic migraines since i was about five yo.

They started out feeling like a hot poker trying to shove my eye out of my head and hard nasea. When i was a kid if i puked my headache would soon go away.

Over the years they've gotten progressively worse. To now at the age of fourty they're so bad that i get vertigo(like I'm in a barrel tumbling down a hill) and blurry vission and even sometimes pass out from them.

I've broken bones, and crushed a nerve in my leg durring my lifetime. I still use my migraines as a 10 to relate pain levels to doctors.

Barometric changes seem to be my largest trigger. Strong perfumes is another. Once i have one warmth, or heat is a verry bad thing. Makes the pain escalate fast and vomiting is pretty much a guarantee. So i have to pretty much freeze myself once i get one.

The amazing thing i get from the is i get my sense of smell back. I broke my nose when i was younget and normally can't smell a thing. But man let me get a graine and i can smell what a guy two miles away had for lunch. Unfotunately this has bad results.

I tend to get a lot more in spring and fall. Normal levels are about 3 a week. Sping and fall i can have weeks straight of them.

So now that you know the basics i don't know what help anyone can give . But i need something! My life is a shambles. I've had so many jobs over my life because i get so many of these and have to call out so much. I haven't been able to get any one to hire me in two years. It was a three year gap the last time i found a job. I miss so many family functions because of these things. Important days for my daughter. Missed her kindergarten grad last year from one. Tried to go but passrd out and spent the day laying in the back seat of my car. My wife is struggling to deal with them. And i can't blame her. While I'm down she becomes a working single parrent. That not only has to take care of our daughter(7yo) bu tends to me as well.

For the last year I've been trying to go it with over the counter drugs. Since i lost my last job and the ins ran out i can't afford a doctor anymore. Can't afford any obamma care ins. and Missouri has lowered the amount you can make and be on gov't ins. So where i was covered before my wife now make 200 to much for us to qualify. So I'm in the grey area.

Doesn't really matter. I'm almost out of drugs to try with the doc anyhow. Imatrex and trexamet were god sends for a few years. But since i have to take them so often that they're effectiveness wore off over time. Since then I've been through so many drugs that i don't even know all their names. I've been through blood thinners, anti stroke meds, anti psychotics, depression pills, but the doc i had wouldn't give me a pain pill. What the heck? He was experimenting with everything else. Why not just give me relief?

I'm sorry to bring everyone down with all my baggage. I just really don't have someone to talk to about these anymore. My wife is fed up with them enough. And all of my freinds were druggies and alcoholics. So I've shed them to clean my alcoholic butt up. So thanks for looking i needed a vent. And if any one has a suggestion that would be great as well.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7357
   Posted 12/1/2015 2:33 PM (GMT -6)   
I suffer from 3 different levels of migraines, meds keep the pain level at a 5 most days.

I find that meditation helps greatly. I use mindfulness meditation. There are many forms and this helps me the most. I use it as a sitting traditional meditation concentrating on the pain; walking meditation to calm and ease stress; momentary meditation when blurry vision warns of impending migraine. Sometimes this will keep the blow up from happening.

I hope you hydrate well, stay away from artificial food ingrediants as much as possible; red and yellow food dyes are huge triggers.

A whole food diet can reduce pain levels.

I hope some of this helped
Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

raser13
New Member


Date Joined Dec 2015
Total Posts : 2
   Posted 12/1/2015 3:13 PM (GMT -6)   
Thanks trina. I too have learned a couple meditaion techniques. I think all of us have to some level. If not they need to. Huge help at stopping, slowing, or equalizing spikes from movement , light or sound. I have found nothing helps with smells.

I've gotten verry good at controling and slowing my heart beat and inturn breathing. I do find it hard to keep centered as the level of pain has increased over the last decade. I don't think I can totally give up yellow food dyes. I just love cheese balls to much. My wife calls them my heroin balls. I really want to try to get that omega proceedure. I've read lots of good things about it. But without ins i just don't know how I'm going to do it. I'm kind of at my last straw on jobs. I've been fighting going on disability for these. But I'm thinking that that might be the next step for me. Has any one here ever gotten disabled for migraines? How did you go about it? What info did you need?

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7357
   Posted 12/6/2015 11:57 AM (GMT -6)   
I know how you feel on that last job. It was a devastating day for me when then doc say no more, you just have to stop.

I am not trying the ogema proc. my neuro does not think it will help me. The botox did nothing.

I am heading into hospital 1/12/16 to stop 1 xr med, iv med to stop pain cycle, them start new med. Finally getting a little aggressive in my own treatment with the pain.


Smells, UGH! My only relief; is get away if you can and saline nasal mist. If that does not work, Imitrex nasal shot [mist] single dose 20mg. Watch out for that nasty bitter taste, have a drink or hard candys with you!

Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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