15 yr old with chronic headache & Multiple white spots on MRI

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New Member

Date Joined Oct 2005
Total Posts : 11
   Posted 11/2/2005 8:55 PM (GMT -6)   
My 15 yr old got a bad headache 9/25 and it has not gone away. Not previous headaches.  She had DHE treatments and trigger point injections.  The headache has improved to a 3 or 4 on the scale but has not gone away.  When she gets up she gets dizzy.  Test have confirmed there is not a CFS leak. CT is normal.  The MRI showed multiple white spots.  The local nerologist states the white spots are normal and nothing else can be done.  The pediatrician is referring us to a pediatric neurologist that specializes in headaches.
Information I have read states the white spots are damaged areas of the brain possibly mini strokes.  Have other teens had multiple white spots on MRI?
Any information would be appreciated.

Jon R
Regular Member

Date Joined Mar 2005
Total Posts : 325
   Posted 11/3/2005 12:06 AM (GMT -6)   

I am 34 and have been having headaches for a year.  After a normal CT and an MRI with 4-5 white spots (suspicious of MS but no symptoms), they have told me that my spots could have been a demyelinating event, an olod viral infection like Chicken Pox, normal spots, spots from migraines, etc etc.  I don't have any answer from you because I am still in the same boat.  basically a neurologist has had me on the MRi checkup/workup for MS for the past year and nothing has changed.



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Nicky (coquitlam55)
Veteran Member

Date Joined Jul 2005
Total Posts : 505
   Posted 11/3/2005 5:17 PM (GMT -6)   

Hi Janna,

I'm sorry to hear about your daughter. Have you tried asking about your daughter's white spots on the MS forum. They may have more information.

I wish I had more advice. You and your daughter will be in my thoughts and prayers.

Good luck.

Fall seven times, stand up eight.
                 --Japanese proverb

New Member

Date Joined Nov 2005
Total Posts : 1
   Posted 11/23/2005 12:16 PM (GMT -6)   
I have never responded to a question on a chat forum before, but imagined you must have been very concerned when you received the MRI results for your 15 yr. old! I have had severe migraines for many years. Five years ago I was told I had several areas of white "spots" in my brain. Of course, things like MS, stroke or some sort of dementia jumped to my mind! YIKES! I was 45 at the time! I had a total work-up for MS and any other kind of rare disease that might cause the problem. Everything was negative. I requested two more MRI's since then and both have been the same. My brain is as "normal" as it ever was! (Now I have nothing to blame my forgetfulness on :-)) And so, like the rest of the human race, it's "one day at a time."
Although you are wise to check it out, those scarey "spots" may well amount to nothing worrisome. I hope everything goes okay.
Also, I have had a drastic decrease in headaches since switching to Topomax.
Good Luck!

Regular Member

Date Joined Dec 2007
Total Posts : 21
   Posted 12/14/2007 10:43 AM (GMT -6)   
Dear Janna,
I've had headaches for 10 years. I can't imagine being 15 with headaches. I highly recommend the book "Heal Your Headache" by David Buchholz, M.D. It's absolutely excellent! I've had decreased headaches since the diet change and getting rid of all painkillers that can cause rebound, including anything from excedrin, to ibuprofin (if using everyday), to any narcotics. Check out the book, it explains the mechanism of headache, and gives a lot of great information. Good luck. (It also explains that white spots often lead to unnessesary testing, procedures, and too many worries, because they are nothing)

New Member

Date Joined Jun 2011
Total Posts : 1
   Posted 6/21/2011 6:08 PM (GMT -6)   
Hi im 16 yrs old,
I have been diagnosed with trigeminal neuralgia and am currently trying out different medications to help it, such as carbomazapine and indomethacin.
I also had a mri and have a white spot on the scan. my neaurologist said it was also normal. Hope this is helpfull.

Forum Moderator

Date Joined Jan 2007
Total Posts : 3570
   Posted 6/22/2011 11:16 PM (GMT -6)   
Indeed white spots or lesions are considered normal for people who suffer from migraines. I am not sure I would call them normal. They do indicate small areas of damage. The brain is incredibly reslient and can reroute signals around areas of damage.

This differs from MS. MSers have lesions but they also have generalized chronic demylenation occuring as well. This causes brain atrophy and this combination is what causes the vast symptoms the MSers experience. Most neurologists can rule out MS via a thorough neurololical exam which checks for normal reflexes and responses. Most MSers have abnormal reflexes and responses.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

New Member

Date Joined Feb 2012
Total Posts : 1
   Posted 2/23/2012 8:14 AM (GMT -6)   
I am 18 years old and have been dealing with dreadful migraines for about 4 years. about a month and a half ago, I went for blood work for other health matter, after which I had fainted and also had convulsions and loss of bladder control. This was obviously something out of the ordinary and frightening. Since I was already at the hospital, I walked over to emergency and they did multiple blood pressure tests (standing, sitting and laying down), a few other tests as well for balance and an ECG. Everything was normal.
The following week, due to feeling fatigued for the entire week after my convulsions, I went to see my doctor, who ordered a CT scan. Although when we got the call from the technician, they said they were going to do an MRI instead because there would be no radiation.
When going for the MRI, the nurse had informed me it was going to be quick because they wouldn't be giving me the dye injection. Although when I had finished the first part of the MRI, the technician came back and told me that I would need the dye "because it was my first MRI."
The following week, we got a call scheduling me for an EEG. We also were told that in my MRI there were some abnormalities.
Long story short, I went to meet with my neurologist yesterday and my EEG turned out normal and the MRI report read that there are multiple white spots in my brain.
I am also in the same boat.
Although my neurologist is requesting a disc of my MRI before she can say anything more, because she doesn't know how many, the size and etc.
I hope everything workable out for your daughter, but on the plus side, if the neurologist didn't say it was a tumour then there's nothing to worry about.

Hughes synrome
New Member

Date Joined Mar 2012
Total Posts : 3
   Posted 3/7/2012 7:38 PM (GMT -6)   
Hi I am 39 and been having a really bad headache for the last 3 months with no let up until I was admitted to hospital with a blood clot on the lung and then for 8 hours my headache went after having blood thinners. I am now being tested for HUGHES SYNDROME (sticky blood) ( this can kill if left untreated, my MRI has bright spots on them too.

After doing my own research on Hughes Syndrome I found out many people are misdiagnosis for MS that is what I was told first off and by the first hospital I was in I only had a migraine and they gave me drugs that I am allergic too and sent me home. I have been off work for nearly four months and now I hope can see the light at the end of the tunnel.

If you are not happy with what you are told and are getting fobbed off start asking doctors to start researching up Hughes syndrome as not many doctor would have come across it as only 1% of the world has it.

New Member

Date Joined Feb 2012
Total Posts : 11
   Posted 3/11/2012 5:20 PM (GMT -6)   
i was in a car wreck ayear and a half ago , thought i had brain damage or some thing any way i am going to paste what i just typed for someone else , because i have been reading , and she could have twisted her neck ,playing sports or jumping on the bed , if she is like my kids , yes they still jump on the bed at that age ,anyway this might help
just had my headaches cured last month with a cervical injection , seems that after a year and a half of constant headaches the doctor who was going to do an injection to cure a compressed nerve , looked at my mri and told me that he could cure my headaches , blah blah something about facet joints , i told him please do , and fifteen minutes later the headaches were gone and haven t come back , but i do still have occipital neuralgia , which is very evident now , thought that the neurologist was off , but turns out he was right on the money with that , actually , it turns out that all of the doctors were not really wrong , just wasn t seeing the right one , until now, anyway it is good to be drug free , hope it lasts , but you need a mri and a guy who does spinal injections to read it , because apparently no one else even knows how to spot a faulty facet joint

New Member

Date Joined Feb 2012
Total Posts : 11
   Posted 3/11/2012 5:24 PM (GMT -6)   
looked up facet joints and found cervical facet syndrome , which i have never come across before , but seems to be what was wrong with me , and i have been researching headaches for over a year now

good luck

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 3/12/2012 12:36 AM (GMT -6)   
Go to a neurologist and have a full body mri
ask about MS too
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~
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