Posted 3/5/2016 1:47 PM (GMT -7)
This will be long, I apologize in advance...
I'm new to this forum but I am usually on the Fibro forum.
I'll try to be quick but a lot has happened this past week. A week ago Friday I was woken up with the worst pain in my head. Something way beyond a migraine. I vommitted a few times but managed to make my way downstairs where my husband was. He walked in the kitchen and asked if I could make it to the couch. I said yes and I fell back straight onto the kitchen floor. Nothing to break my fall. I was unconscious and my son called 911 while my husband tried to help me....
I was admitted to the hospital and had a series of tests to rule out a brain bleed, seizure activity or any heart problems.
I ended up having a spinal tap because the dr was really concerned I had a brain bleed. Painful but I thought it was important.
They had a hard time getting the migraine pain under control. I was on IV dilaudid and toradol
I went home Monday. I just had to come home....Wednesday night I had such a severe, different type, of headache. From past experience I knew it was a spinal headache and during the spinal tap they punctured my dura and I was leaking spinal fluid.
I ended up in the ER for over 12 hours. My husband drove he at 4:00 am! A blood patch is needed to fix the puncture hole and stop the headache. A blood patch can be complicated. An anesthesiologist team has to do the procedure. They need to take blood from a clean vein (one that hasn't had an IV or wasn't collapsed) and then they take out 20 ml ( I think) insert it back into the original spinal tap are to hopefully block the leak. It is painful and no pain meds are given.
All that is hard enough BUT I had no veins left. The nurses, while I was in the hospital, literally blew out all my veins. ( u should see my arms. I look like I was beat up!)
The Drs checked my feet, hands, arms and found nothing. I was desperate. If u have Ever had a spinal headache u will understand....the dr found a vein...in my neck...failed the first time but was able to get an IV in my neck and complete the procedure. IT WORKED
In lots of pain from all the needles and spasms in my back from all the injections .
I'm very sorry this is so long but wanted to know if anyone has experienced this.
It was decide that Botox injections would be the next best step to help my migraines and even help my fibro with the muscle tightness in my shoulders and neck ....has anyone tried Botox
Thank you if you read through whole story. So sorry it was so long.
Any input if u have experienced anything similar or the Botox.
Fibro, 14 right knee surgeries ( total knee replacement & 3 revisions ), last one on 6-04-15, C5/C6 cervical fusion & discectomy, both ankles reconstructed, right shoulder reconstructed, gall bladder removed, ERCP pancreatitis followed, migraines, reflux, IBS, TMJ, nerve damage..Meds: nortriptyline 300 mg, Lyrica,Tramadol, Valium, vitamin D, magnesium]