Meds not working, pain 10/10, advice please

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Regular Member

Date Joined Mar 2016
Total Posts : 49
   Posted 3/24/2016 10:58 PM (GMT -6)   
Haven't posted on this board ever, so hi I guess; anyway here it is: I've been having migraines probably since childhood, some years are good and some, well, not so good. First med prescribed by neurologist was sumatriptan which didn't work that great, a few months later was given rizatriptan which worked reasonably well. Yesterday/today, I had one of the worst migraines I've ever had. What I did at onset, of course, was take two rizatriptan and wait it out in a quiet space. From there my headache just intensified and blossomed into the most incredibly painful migraine I think I've ever had; was nauseas, sensitive to the slightest bit of light, and all clammy. Just awful. As a last resort I took two percocets which didn't do much either. I was in so much pain, I honestly wasn't really aware of the time and I think I passed out at one point.

Should I move on to the next triptan? Start w/ preventative meds? Should I be concerned about something else going on?

New Member

Date Joined Mar 2016
Total Posts : 4
   Posted 3/25/2016 7:09 PM (GMT -6)   
I'm new here,too. It's good to talk to others going through the same thing.
I'm not really the one to give you medical advice, all I can say is that I've had some doozies where I thought something was seriously wrong, but they always pass eventually. I'm a medical writer and a top migraine doc once told me that migraines vary from person to person, and from migraine to migraine in any person.

Triptans stopped working for me awhile ago, btw. I do hope you are better today.

Achey all over
Regular Member

Date Joined Sep 2013
Total Posts : 187
   Posted 3/26/2016 10:22 AM (GMT -6)   
Hi and welcome
If your migraines have been getting worse u may want to see your neurologist and try preventative meds. I am on Nortriptyline ( also fo Fibromyalgia) and nadodol (sp?) overall they had been working. When I had a break through migraine I would take something called Cambia. It is a powder u mix w water. It is magical. With in 20 it takes the pain down to a very tolerable level and I am no longer nauseous. It is wonderful!

I actually just had a bought of migraines and passed out on the kitchen floor. In the last 3 weeks I've been in the hospital twice for 4-5 days and many trips to the ER. Bottom line everything in my brain is good. No brain bleeds or tumors. They are just calling them complex migraines. I even lost my speech for a short period of time. They can be scary and extremely painful.

Sorry this was so long! If u have a neurologist I would see them and talk about a different breakthrough medication and preventative.

Best of luck and feel better!
Red Text[/red
Fibro, 14 right knee surgeries ( total knee replacement & 3 revisions ), last one on 6-04-15, C5/C6 cervical fusion & discectomy, both ankles reconstructed, right shoulder reconstructed, gall bladder removed, ERCP pancreatitis followed, migraines, reflux, IBS, TMJ, nerve damage..Meds: nortriptyline 300 mg, Lyrica,Tramadol, Valium, vitamin D, magnesium]

Regular Member

Date Joined Mar 2016
Total Posts : 49
   Posted 3/26/2016 8:46 PM (GMT -6)   
I agree, it's good to commiserate. My migraine seems to be fading a bit now. After two days in bed, lots of water and a good bit of codeine, I'm doing much better. Hopefully will be able to see my neurologist later this week and sort all this out.

Thanks for the positive feedback and thoughtful replies, really appreciate it!

Veteran Member

Date Joined Jun 2006
Total Posts : 909
   Posted 3/30/2016 12:21 PM (GMT -6)   
Do you take other meds with the triptans? I always take tylenol and/or advil when I take the first Maxalt. I usually need to take at least two Maxalts to get rid of a migraine, but it can easily take a full day for it to fade. My neuro said I should also take caffeine with the meds (she said a coke but I don't drink soda).
30s F. Crohn's ileocolitis dx 2/06. Proctitis dx 10/12. Arthritis dx9/09. GERD dx1/13. Asthma dx4/13. Raynaud's. Chronic headaches/migraines. Chronic constipation.
Lyme IgM+ bands 23, 37, 41, 93 (finished ABX regimen 10/15).
No current IBD treatment (past: Remicade)
Botox regimen for migraines.
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