Anyone familiar with paratrigeminal neuralgia?

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Date Joined May 2005
Total Posts : 7698
   Posted 4/27/2016 10:11 AM (GMT -6)   
Raeder paratrigeminal syndrome (ie, paratrigeminal neuralgia) is characterized by severe, unilateral facial pain and headache in the distribution of the ophthalmic division of the trigeminal nerve in combination with ipsilateral oculosympathetic palsy or Horner syndrome.

I have a friend who is suffering from this as a result of Traumatic Brain Injury - I'm wondering if any of you are familiar with it and/or know of any online resources that might be available.

In particular, she is looking for a neurologist in east-central Florida who can help with Lyrica, Nerotin, those kinds of meds for nerve pain. (The neuro she just saw had the nerve to tell her that her pain was from childhood abuse and she just needed a shrink!!!)

Thanks for your help!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

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Date Joined Apr 2016
Total Posts : 1
   Posted 4/29/2016 10:42 AM (GMT -6)   
I have used Cambia for about 3 years. It's the best thing for my migraine headaches. With in 15 minutes, the pain is completely gone. I take it, sit still , and quiet. Next thing I know, my headache is completely gone. VERY seldom does the headache return any time soon. Thanks makers of Cambia.
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