well, my experience with topamax has come to an abrupt end. I spent roughly a week trying to tough it out with my legs feeling totally crazy and my anxiety way out of control before I couldn't stand it anymore and stopped, from 50mg to nothing.
I might not have given it enough of a chance, but my legs driving me crazy was just unbearable, having lupus and fibro, the fibro especially, needs sleep and my legs just weren't letting me have it. I stopped the med and now it's gone.
I still have to wonder if it was all the craziness that was going on in my life at the time (my f-i-l passed away totally unexpectedly) and maybe my emotions had part to play and now I am wondering if things since have gotten a little more "steady" that I should try again? I probably ought to call my pcp and get his thoughts, I am sure he won't be happy that I just stopped, but I couldn't stand it.
It says this drug can cause muscle aches (as well as cure them, go figure, I found this site that gives a play by play of this particular person's experience that LOVES topamax) and maybe because my legs are already prone with RLS it went there?
I did enjoy the weight loss part, got rid of those holiday pounds for me...could've stood a little more, but I will wait and see what the doc says. Oh, and I was SEVERELY constipated, a side effect as well.
"Even though I'm walking through the valley of the shadow, I will hold tight to the Hand of Him whose love will comfort me, and when all hope is gone and I've been wounded in the battle, He is all the strength that I will ever need, He will carry me."
dx: lupus 2004, sjogrens 2005
RLS, anxiety, IBS, migraines
Meds: Plaquenil, Zelnorm, Seroquel, Klonopin, Ultram, Flexeril, Zomig, Topamax