Persistent chronic daily headaches

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New Member

Date Joined Mar 2017
Total Posts : 1
   Posted 3/31/2017 9:50 AM (GMT -6)   
Hello everybody,

I thought I will start this topic as I just came from doctor and this is my diagnosis. Wording is so odd and I can't believe that this is an official diagnosis. I guess anything that doesn't classify for migraine or any other type of headaches, fall into this category.

I am prescribed Propranolol and will do lumbar puncture after a while but I am wondering what are your experiences in dealing with this daily pain?

God bless us all and give strength every single day to go and live with this condition!

Forum Moderator

Date Joined Apr 2012
Total Posts : 7515
   Posted 4/5/2017 2:38 PM (GMT -6)   
This is an 'umbrella' diagnosis.

See my diagnosis's under signature. These came from John Hopkins.

My current doc, uses PCDH, with aura's etc...

I was on P for years, now I talk Topomax with 3 other meds... combos work best for me. My pain level is usually 3-5 on the pain scale. I will never be pain free.

Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Veteran Member

Date Joined Aug 2014
Total Posts : 1527
   Posted 4/25/2017 2:36 AM (GMT -6)   
I have daily headaches,strange maybe i have migraines,don't knnow.

I am Allergic to pressure changes ,mold and dust.

Taking Advil Pm today and it helps.
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