Ocular Headaches

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New Member

Date Joined May 2017
Total Posts : 1
   Posted 5/4/2017 12:40 AM (GMT -7)   
I have been dealing with chronic migraines since 2011/2012. In August of 2016 I started experiencing new symptoms of paralysis/numbing in my right side of my face including my tongue, lips, eye & part of my neck. The paralysis/numbing occurs either as a warning of an oncoming migraine or can occur hand in hand with one of my migraines. I have experienced 15 Ocular Migraines on average for the last 6 months (though I do have cluster headaches in addition to these). I currently have a referral to my Neurologist to discuss the possibility of Botox injections. I have had 4 back surgeries, 3 of those involved my neck. I am curious to see if anyone else has experienced these symptoms & what has helped or work for them in relieving issues pertaining to Ocular Migraines.

Forum Moderator

Date Joined Apr 2012
Total Posts : 7280
   Posted 5/7/2017 12:13 PM (GMT -7)   
I have these symptoms, but I have Trigeminal Neuralgia, Hemicrania Continua, cluster, and A typical face pain.

I have auras most days, some days all day long. EVERY day when I wake up, I have 30 minutes of color auras, much like a kaleidoscope effect, which makes it hard to see.

I tried botex in 2010. It do not work for me. Gave some relief.

I am currently taking Toprimate 250mg a day and baclofen 5mg 3 x a day. k

This keeps my pain level down to 4-5 most days, which is manageable for me. I am actually content with this for now.

The only choice I have of being somewhat pain free is to deaden the nerves. That would mean choosing one side of my face with the pain is most of the time, and having it sag the rest of my life.

It is amazing the tolerance I built up to the chronic daily pain. Dealing with this since 2006

I wish you peace and strength.
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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