Uncontrollable Migraines

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MAKersey2009
New Member


Date Joined May 2017
Total Posts : 2
   Posted 5/15/2017 1:03 PM (GMT -7)   
Hey everyone!! So I have been suffering from excruciating migraines now for about a year and a half. I was diagnosed with. B12 and vitamin d deficiency as the cause of my migraines. They have prescribes me topomax at 50mg twice a day plus a form of an inhaler and also trezix incase neither of those work. Lately none of that has been helping. I almost become like a stoke patient; my speech begins to slur and my visions blurs today they called me in a new prescription of Cambia. Has anyone ever heard of this??

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 5/15/2017 1:37 PM (GMT -7)   
Welcome to the forum.

I have had daily head pain since 2006.

here is info on Cambi. /www.drugs.com/cambia.html

I can not take it because one third of my pain is from cluster headaches. then I have Trigeminal neuralgia and hemicranial continua. All under the "umbrella" of migraine.

I too take topomax, I am on generic, take 100 am, 150 p, I also take 5mg of baclofen 3 times a day. This keeps my pain Level down to around 3-5 in the scale .

I understand your slurring and vision.

I can suggest a few things to help that. I worked for me and I know a few other people. Change your diets to Whole Foods diet. NO processed foods. Reduce read meat s much as possible. NO artificial ingredients, NO food dyes. Wean off the caffeine to nothing.
NO Soda!!

Check the juices for artificial stuff. I drink 32oz + of water a day.

Fruit, veggies, salads, roast veggies in oven, omelets, rice dishes, grains, whole new world!!

Love mangos, avacodos, etc....

Weather plays a big part in my pain, so I may be increasing the baclofen up some.

But since 2006 and many neurologist I have discovered that just meds are not going to be MY answer.

I hope some of this info help.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

MAKersey2009
New Member


Date Joined May 2017
Total Posts : 2
   Posted 5/15/2017 1:38 PM (GMT -7)   
Thank you so much I will definitely look into all of these options especially the changing of the diet!!

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 5/15/2017 1:41 PM (GMT -7)   
I hope you get relief soon.

At the top of the forum, there is a thread Resources. There is a link to migraine diet. I have not seen it for a long time.

Important thing to remember with uncontrolled pain is the artificial things going in your body.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Beachbumgirl
New Member


Date Joined Jan 2016
Total Posts : 18
   Posted 6/1/2017 2:10 PM (GMT -7)   
Topamax is also a process and may not work for all. Starting dose is 50mg. Dose can be increased slowly by MD. Some people it helps, others not. I have Hemicrania Continua also. My drug of choice is Indocin and Melatonin.
What works is such trial and error. Don't give up!
Best wishes!

Owen's mom
New Member


Date Joined Jul 2017
Total Posts : 2
   Posted 7/22/2017 10:38 PM (GMT -7)   
I had migraines. I don't if anyone knows this, but if you have a pain manager/Dr., he may be able to GET RID OF YOUR HEADACHES! My Doctor got rid of mine. It was a very simple out patient thing that didn't take long at all, and then I was free. Went home that day, probably took 30 minutes, no pain involved. Just wanted suffer's to know this info. I always hear about people trying this and that and nothing works. THIS DOES WORK. It did for me anyway. So, I think it is definitly worth a try to get rid of those awful things.

Owen's mom
New Member


Date Joined Jul 2017
Total Posts : 2
   Posted 7/22/2017 10:41 PM (GMT -7)   
Did you see where I wrote in that a Pain Doctor can get rid of migraines? A quick, no pain, out patient thing and go home with no headaches.

Clustersurvivor33
New Member


Date Joined Aug 2017
Total Posts : 6
   Posted 8/5/2017 11:15 PM (GMT -7)   
I have been getting clusters for 17 years tried everything nothing helps I can only solve the pain with injections of imitrex nothing else works for me bNotafraid do you know what triggers yours I can't figure out mine only weather factor

Clustersurvivor33
New Member


Date Joined Aug 2017
Total Posts : 6
   Posted 8/5/2017 11:17 PM (GMT -7)   
How do you get a pain specialis

Vee721
New Member


Date Joined Aug 2017
Total Posts : 12
   Posted 8/14/2017 1:42 PM (GMT -7)   
If you were diagnosed with b12 and vitamin d deficiency, I hope there was follow-up - ie b12 and D supplements. I also hope that after taking the supplements for a few months, you were retested with a blood test to see if you are still deficient. Deficiencies can cause problems, but taking supplements when you are no longer deficient can also cause issues. In the case of too much vitamin D especially, it can build up and lead to excess calcium absorption/ SO make sure you get a blood test. If you are no longer deficient, but still getting migraines, it may be time to consider some other causes.
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