One sided migraine on and off for 20 plus years/ Hemicrania Continua

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Beachbumgirl
New Member


Date Joined Jan 2016
Total Posts : 18
   Posted 6/1/2017 1:58 PM (GMT -7)   
I am a 40 plus female married mom of two boys.
They are now 22 and 26yo. They were little when my migraines began
And I began seeing Neurologist after Neurologist trying to find out why I was getting migraines. No one knew.
Forward 20 yrs. and I was just diagnosed by a headache specialist
With Hemicrania Continua. I was getting constant migraines on one
Side of my head and very few things took it away.
UNTIL we tried a drug called Indomethacin. Taking 75mg three times a day is a GAMECHANGER!!!!!!!!!!!
I never had a resolution to my migraines that quickly. yeah
So everyone does not have this diagnosis, but if you think you may, speak to a headache specialist .

I hope this helps even one person.
tongue

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 6/4/2017 9:02 AM (GMT -7)   
Thanks for posting,

This med never worked for me, I am so glad it has worked for You.

I take a combo of topomax and baclofen.

Have a great day!
Peace
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Beachbumgirl
New Member


Date Joined Jan 2016
Total Posts : 18
   Posted 7/19/2017 6:48 AM (GMT -7)   
Sunny days ended after my stomach did not like the Indomethacin pills. I started the same drug in a lower dose (just as strong) rectally. I was taking it three times a day. They were wearing off after 4 hrs.
I visited with my headache specialist.

Last week, I needed to be hospitalized for 3 days to break a 7 day migraine. That was IV dhe and IV Toradol. It finally broke from a level 10 to a 5.
I followed up with him yesterday, I am starting Methylergon Maleate
0.2mg tablets twice daily to start and increasing slowing. He gave me a chart to follow. This can cause unwanted side effects he says, so after 6 months I need a drug holiday.

After taking the first pill last night at dinner, today was the first morning I didn't wake with a migraine.

Has anyone used this drug before??
It's new to me.

I'm starting a new job soon and in the back of my mind all I can think of
is hoping my migraines don't get in the way 😊

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7144
   Posted 7/31/2017 12:44 PM (GMT -7)   
Yes, I went through that.

However, my co pay was 3k

So my GP told me that a 5day step down of prednisone usually does the same thing.

So next time I tried that and it worked. I would like to say also I get Hemicrania, Trigeminal Pain and Cluster pain all at once, and the Pred. worked for me.

I know it does not work for everyone, but a little more knowledge, is a little more armed to try something else.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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