Chronic daily headaches and migraines ruining my life.....

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EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 3/8/2011 10:52 PM (GMT -7)   
Hi MH,

That sounds just plain terrible. I'm sorry your having such a rough run. Month+ migraines are the absolute worst!

Your absolutely right, many neurologists don't really understand complex migraine. And there are precious few who "comprehend" the level of suffering they inflict. There are those fantastic few who do... and they are absolutely worth traveling to. Have you been to any of the large reputable migraine clinics (Diamond, Jefferson, ect.)?

I wish you all the best with the migrainal product. I've heard glowing reviews from my headache specialist about it. The trick with the stuff is to not give up too early. Like all of the herbals/vitamins, if it works for you, it can take up to a few months to kick in. The upside... very few and generally insignificant side effects.

Good luck and best wishes.

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 3/9/2011 10:59 PM (GMT -7)   
Hi MH,

Not sure where your other post went, but I think I remember you mentioning something about going on a cruise to Central America and the migraines disappearing? It's really interesting that you mentioned that. When I went to (northern) south america my migraines disappeared as well. For me, the lighting conditions were much better (I'm pretty photosensitive).

It's also interesting that you mentioned the swimming and snorkeling. Whenever I'm around ocean water my migraine frequency seems to lesson as well. NaCl and water does not have the same effect. Ohhh, the weird nuances of migraine...

You mentioned that you are in California. If you're near the Bay Area UCSF is supposed to have a very good, upstart headache clinic. Last I checked it was a six month waitlist, but hey... that's pretty standard for the better clinics anyway.

MigraineHell
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/9/2011 11:13 PM (GMT -7)   
Last night I tried something - and it worked... Benadryl... 1 pill - I actually woke up with almost no migraine... I feared I was getting one, so I hopped out of bed, started to do my shoulder & neck exercises... and went outside, to breathe fresh air, and I seemed to have escaped it for this 1 day...
 
I don't no where that post went either... ?
 
But yes, when I'm closer to the Equator - or near water - Sea Level - whether it be Hawaii, Tahiti, Honduras, etc. - I'm basically Migraine free... and I can eat anything, drink anything, and nothing gives me a headache...
 
Crazy, it's all weather/pressure related along with all the other stuff...
kayaking & snorkeling and just moving the upper body as much as possible, swimming, etc. Really helps the muscles and blood flow for me and it sounds like it does for you too...
 
I am not going to bother with any more doctors, studies, etc. unless I stumble upon them - I am on a major research hunt for the Migraineurs out there... I'm going to find my own way like I did last night - and use the drugs the way I think they work best for me... and as soon as I find the right combination, I'll gladly tell anyone suffering... There has to be an end - otherwise, I'll be looking for Kevorkian's book...
 
Because today even though I've had a light headache and almost started to get a migraine when the temperature went up 20+ degrees in a very short time... and the pressure built up in the air... I took another benadryl and granted, I fell asleep - but, the pain went from say a 1 to a 0 whereas usually each day is at a 10+ 
 
Try benadryl... I think it has to do with inflamation, it lessens it - I'm going to take one again tonight... It will be quite interesting if I wake up with a raging migraine or not -
 
I'm in So. Cal. -

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 3/10/2011 12:12 AM (GMT -7)   
It's interesting that you mention the benadryl. I think I remember reading on an NDPH forum someone mentioning some type of anti-histamine helping their headaches (they use it daily).

Going from a 10+ to a 1 or 0, especially after a month long migraine is absolutely miraculous. I would be over the moon. Congrats!

MigraineHell
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/10/2011 12:19 AM (GMT -7)   
Thanks! Yes, I was quite surprised! I'm going to try it again tonight and if it works - there must be some truth to the whole anti-histamine, anti-swelling of the blood vessels, less irritation to the nerves, etc.

I'm hoping it works, but I'm on the verge of a migraine... my eyes are extremely sensitive to the light right now and I'm feeling the blood/throbbing behind my eyeballs and the ache at the back of my head/neck... and my jaw is tight -

So... Jacuzzi, not too hot - that makes it worse too... then the benadryl!!

;) If it works, I will be over the moon!!

Thank you!! So sweet ;)

Bonitaluv
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/10/2011 12:45 PM (GMT -7)   
Hello EE,
 
I really understand where you are comeing from,I have hemiplegic migraines.I have had daily pain since 2008..
 
about the pain medicine,it is true that you dont want to take norco,or any types of norcottics for a migraine..how ever that is easier said then done because you want something that will relieve that pain.. one bad thing about takeing norcottics they give you rebound headaches...
 
I was also reading thru and i didnt see any preventative medicine..
Your nuerologist is the person to see about migraines,so if you dont like the one you are seeing then seek another until you like them..
 
Im sorry that they are treating you wrong at the ER,and hospitals.Well that is alot of people with migraines..I have been ask the question "do i want a hit" because i was getting migraine cocktails along with deluated(a norcottic)and that is next to the moraphine(sorry if i spell the meds wrong)family.
 
The best thing for you to do is seek the neurologist and get your preventative meds and the abortive meds..sleep aides everything you need to help..
 
I truelly underastand because i deal with daily pain and 3-4 attacks a week..along with other symptoms like leftside paralysis and slurd speech due to the migraine..I have lost over 60 pounds from vomitting so much..You not alone it is a fight to get the things you need..
Good luck and will look out for more updates..

Glacier
Regular Member


Date Joined Mar 2011
Total Posts : 31
   Posted 3/10/2011 1:17 PM (GMT -7)   
 
 
 
When I have days like that, first thing I just resign myself to the fact that nothing else is going to take place that day except me IN the hot shower then laying on my bed with a heating pad on my head. Some people say cold helps them but I go with heat, 100%. Cold just makes me scream.

MigraineHell
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/10/2011 3:03 PM (GMT -7)   
** Try this... second night in a row I took just 1 Benadryl and did not wake up with a migraine... **
 
I cannot believe this... I do not have a headache. I do have sensitivity to the light, and my neck/shoulders/back aches and my jaw is very tight - and the weather has drastically changed throughout the night and into the day - so I should be in major pain right now...
 
I've actually not had any midrin, diazepam, pepcid, toradol injection, phenergan injection, vicodin, etc. in almost 2 days...
 
And I'm drinking Sunkist... and I'm eating a Salami & Cheese sandwich - go figure?
 
I did notice I smelled everything in the kitchen - from the vinegar, to the garbage disposal, and now my nose is getting stuffy - so I may not be out of the woods...
 
But, my point is... If I can get the medications the doctors have prescribed out of my system, and use over the counter benadryl - 1 pill - for awhile - to try and get out from under this Migraine Hell -  - there must be something to the anti-histamine involvement helping with relief? 
 
I'm certainly as stressed out as anyone could possibly be today... Major tension...
 
Just try the benadryl if you can - to see if it works for you...
 
I'm so done with the complicated cocktails prescribed by the neurologists - - it's just too much... As I watch Survivor - I think, I couldn't even go on that show - there would be no drugs if I got a migraine... But then I think, what did people do in the dark ages? I want to get away from the migraine drugs - if at all possible - but I have them, and will be refilling them for emergency use...
 
One thing I can't stand is that girl on the Excedrin Migraine commercial, I just saw it... I want to strangle her... If only she knew what a migraine was like... My gawd! 

EvilFluorescents
Regular Member


Date Joined Jan 2011
Total Posts : 224
   Posted 3/10/2011 3:36 PM (GMT -7)   
Congrats!

Just one word of caution... if you take the diazepam daily, that is definitely one that you are going to want to withdraw from slowly. It's a safety thing.

That's really fantastic that you've found something that's working so well for you!

MigraineHell
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/10/2011 3:54 PM (GMT -7)   
For some reason the diazepam does not bother me either way, I could take it or leave it - same with vicodin... I'm not "addicted" (Like I got to have it, or I want it or crave it... I just use them, because they are there, if they weren't I go to the Emergency Room... Expen$ive...) to any of these drugs - for example - if I do not get a headache now - say - until a week from now, or ? I will not take any of thos medications... Granted, I'll have some crazy dreams/nightmares... but - my thing, I just have to make sure if I do take any kind of medication, I have food - or pepcid and then some Tums or something for the acid indigestion...

I hear alot of people have trouble with the diazepam, or let's just say it - valium... I never took it until I broke my clavicle - the back, shoulder, neck spasms - it helped calm them down a bit - or calm me down enough to where I could deal with the pain, I just try to "breathe"...

I have a light headache... If everyday was like this - I'd have nothing to complain about... Because most everyday of the past 9 years has been spent with a full blown migraine, each month, the number of days with a migraine vs. without only going up!

I have cancer and migraines - migraines for me are worse than the cancer and the cancer is not cureable... so that gives you an idea of what I can deal with ~ I'd rather cure the migraines over the cancer.

I hope you have a migraine free day & night ~

jenabelle
New Member


Date Joined Jan 2017
Total Posts : 1
   Posted 1/5/2017 12:35 PM (GMT -7)   
Hi, I just started getting TONS of headaches in the last 3 months. They sometimes turn into (milder?) migraines. When I say milder, I mean that it hurts horribly on the left or in the center of my head, with places that hurt around my eyebrows, behind my eyes, and temples, and the only thing that helps is lying down or sleeping, in the dark. I did have a bad migraine once, maybe a month ago, with nausea and chills - that was awful. It feels like an illness and I feel drained after them. Previously I had milder migraines, usually around my period or if I got very excited or stressed, usually socially.

Now I'm getting these milder headaches that don't go away - they are there all the time, and sometimes get worse. I had one for 15 days straight, and since then, it seems like they return at the drop of a hat. I'm living in fear of them, and trying to prevent them. I've always been sensitive. My house burned down in a wildfire in August - that's when these daily headaches started. I have been staying in SF with my boyfriend and barely go out because of the headaches. The city overwhelms me anyway - I had been living reclusively and peacefully in the country, fixing the house that burned down. I've been trying not to worry.

I don't want to try prescription medications. Has anyone had any success with mineral supplements, or blood tests showing deficiencies, or (good) chiropractor adjustments? I noticed I was clenching my teeth and I'm fairly sure I've stopped, but it feels like something is off in my head physically, and possibly chemically. I even tried CBDs but the tincture I had had too much THC - so I spent the day feeling how my consciousness and body are one thing - I felt which muscles were tense, but it was like tripping. It helped, because I relaxed, and the headache did go away - but I couldn't live in that state! Perhaps strong pain killers would make me loopy, too, though.

Two months ago I saw my DNFT chiropractor a number of times - she made my jaw feel straight again and it stopped clicking. I was seeing her because I pinched a nerve in my sacrum a year ago. It took several sesssions, but my sacrum/tailbone are a lot better. I know the sacrum relates to the cranium in a strong way - perhaps seeing her again will help. I read on here that people took calcium magnesium and B2. I've been taking vitamins (Olly brand) and also magnesium. I'll add calcium - I've been wanting to anyway. I wonder if there's something else I can do - I'm scared of the western medical approach! If anyone has any advice about treating migraines or daily headaches naturally, or discovering their cause - please let me know!

catika
New Member


Date Joined Mar 2017
Total Posts : 1
   Posted 3/13/2017 1:43 PM (GMT -7)   
i saw all the comments are old, has anyone find out a relief for the daily headache/migraine?
i had try almost all medications without success, and seem many different neurologist, pain management docs and headache specialist. result waist of money and time.
please if any of you MigraineHell or any other one has found something that really help please tell me.

Brian S.
New Member


Date Joined Mar 2017
Total Posts : 2
   Posted 3/17/2017 10:35 AM (GMT -7)   
I have migraines almost every day, at least 20-25 days a month, and cant find anything to help prevent, or decrease the frequency of them. I would really appreciate any help or information I can get to tame these down as it is getting unbearable and I can't have any sort of life sitting at home waiting for the next migraine.

I have been told by doctors that my meds from chronic back pain for the last 13 years may be the cause but they are not sure as I mad migraines before but not as frequently. I recently started weaning off the narcotics to try to stop the headaches as I would rather have constant back pain than constant migraines and I don't know what else to do to decrease or stop them.

I have been tried all natural remedies I could find and have been prescribed many things for them with no avail. I heard good things about Botox for migraines so I tried it, I ended up with a continuous two week headache so I will never try that again. I recently started taking Migrelief as I have read many good comments about it online with no effects yet but it takes weeks to work i guess so I am continuing it.

Most of my migraines are mild and only last a couple hours, but sometimes they last for days or even weeks at a time. They are never mild enough to function well, or at all, while having an attack. Zomig and sleep when I get the aura works most of the time for mild to medium attacks, but I obviously can't take Zomig daily. I only take it medium pain attacks and try to get away with sleep alone for more mild migraines. Usually I wake without the headache. For severe attacks only Toradol injections at the doctor work, narcotics have never worked to alleviate migraines for me.

Post Edited (Brian S.) : 3/17/2017 11:39:49 AM (GMT-6)


Beachbumgirl
New Member


Date Joined Jan 2016
Total Posts : 18
   Posted 3/21/2017 1:04 PM (GMT -7)   
Hi everyone. I'm new here. Migraines for 20+ years.
1). See a migraine specialist
2). Be on preventative meds
3). Try not to take abortive meds > 2x a week. You can then get MOH.
4). If your present specialist isn't helping, move on.
There are many new treatments out there to try. We have to just keep trying. Not fun!! I face bad migraines on a daily basis. Seeing a new specialist this week.
I won't let them keep taking my life away like they have. 😡

I hope this helps some of you. Hugs.

MMMIkee
New Member


Date Joined Apr 2017
Total Posts : 1
   Posted 4/15/2017 12:32 PM (GMT -7)   
EE said...
Hello - I am new to this forum. I joined because I don't know where else to turn. I am so desperate for help right now, and I have no one to go to. I have suffered from migraines/chronic headaches for the last 10 years. Over the past year, they have turned into daily chronic headaches, most of them migraines. Some are worse than others, but I honestly can't remember the last day I didn't have a headache. I was hospitalized February of 2005 for a migraine that lasted two weeks straight with no relief, and treated TERRIBLY by the way. Ever since I got out of the hospital things have gotten worse. I had headaches so bad that I was on 4 10mg/500 mg Hydrocodone a day. I was also taking Ambien at night to sleep, because the pain was so bad I couldn't even go to bed at night. Unfortunately, the Ambien had a very bad effect on me, and caused me to be in a really bad car accident, and I ended up in the hospital last August. Immediately following, I ended up going to rehab because they decided I had to get off the pain killers and couldn't do it on my own. The thing people didn't realize was that the only reason I was taking the painkillers was because I was in so much pain. I haven't taken any painkillers since August, but I still have the daily headaches. The bigger problem now is that even if I need painkillers, I can't get them, because now I am looked at as having an addiction problem. This is a problem for me because I can't find anything else that works. Headaches are literally ruining my life. I don't know how much more I can take. I go to bed at night with a headache, and I wake up in the morning with a headache. I won't accept living with these. I have seen so many doctors over the years, and none of them have been able to help me. I think the doctors I have seen have actually made the problem worse. I have had multiple MRI's and CT-scans over the years, and all of them came back normal. I am still left with the uncertainty of not knowing what is causing these headaches. I am so miserable I can barely concentrate on anything. I am afraid my work is being compromised because the headaches rule my life. I have taken every triptan on the market, and Relpax is the only one that has worked for me, but insurance only covers 6 tablets a month, and I get a headache every day, so you can see what the problem is. The only medicine that gets rid of the pain is hydrocodone. It doesn't get rid of the headache, but it at least provides relief for a short period of time, and for people who suffer from migraines, ANY time without a headache is a good time. I just don't know what to do anymore. My family doctor is worthless to me. I have an appointment scheduled to see a new neurologist on February 2nd, but I am not very hopeful because I have never gotten any help from a neurologist. I am tired of being looked upon as someone who is only out there to get medicine. I am only out there to get RELIEF. I don't know why that is so hard for people to understand. I don't want to be treated badly anymore. I want to get help, and I want to get rid of the headaches. I am only 26, and I really cannot see myself going through life this way. I have no quality of life because of headaches. I am in desperation right now. If anyone out there has any information that can help me, I would be truly grateful. I am so miserable. Pain will make you do crazy things. I have been in so much pain, that I actually wanted to fall down a flight of stairs so I would have some other pain than a headache. That is how bad the pain is. I don't think a person should have to live like this.



Help anyone???? I am going on day 10 with the same headache, and nowhere to turn....


hey there. I also new a first-timer here. I don't suffer from the headache but a friend of mine does. so that is why I'm here. I read your post, and I would like to ask you, have you ever take any herbal medicine? I know that my friend use clear migraine, it's special capsuls and they help her in most cases. I know that it's quite expensive, so I can give you a discount she uses. There are many pills like this. I've read many feedbacks and there is no general opinion regarding this one. some people say it's great and helpful, but it didn't work for the others. so I don't know. Just wanted to help.
take care.

Post Edited (MMMIkee) : 4/15/2017 1:36:16 PM (GMT-6)

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