Cluster Headaches

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woodiebob
New Member


Date Joined Aug 2017
Total Posts : 6
   Posted 8/29/2017 6:54 PM (GMT -7)   
Six years ago, at the age of 66, I contracted Cluster Headaches. CH come primarily in two forms, episodic and chronic. Mine are chronic, which means I get them year round. I would usually have 4-5 CH per month except when a cardiologist decided to change my meds. For the following 5-6 months, I suffered through between 12 and 18 CH per month, even after going back to my standard preventative medications, which is Lithium Carbonate and Verapamil. My most effective medication for treating them was a combination of Migranal and O2. about a year ago, my CH doctor added an Ergotomine cream which is applied to the back of my neck. I can provide much more information but for here, I want to keep this readable.

Eighteen months ago, I started keeping a log of what/when/intensity/duration/medication. This log has been extremely important in reviewing my ongoing episodes. I was getting to the point that I was afraid to go to sleep because I knew what was coming. (There is a good reason why the headaches are called "Suicide Headaches".

It's too early yet to know for sure how this is working, but on June 12, 2017, my wife started using aroma therapy with essential oils, Purification, Thieves, Lavender, Peppermint, almost around the clock, including nighttime. Since that date, I have been completely free of Cluster Headaches. Since the onset, the longest I have gone without a CH is about four weeks until now.

Just my $.02. I hope this works and I hope it helps.

woodiebob
New Member


Date Joined Aug 2017
Total Posts : 6
   Posted 8/31/2017 10:05 AM (GMT -7)   
If anyone is using aroma therapy for CH (or other headaches), it would be great to hear your results. I don't know if it is just a coincidence that my CH picked this time to go into remission for the first time or if AT is actually making a difference.

CH has no known cause, no known cure and no known trigger. We are at the mercy of the whims of our brains.

If it turns out that AR helps, then that would be a miracle.
Onset of Cluster Headaches in 2011 at age of 64. Preventive medications Verapamil and Lithium Carbonate. Treatment medications: Migranal, O2 and Ergotomine. Normal start at 2:30AM and last about one hour. Intensity ranges from pain level 6 to 10 with most at 8. Since June 12, 2017, have been using aroma therapy about 8 - 16 hours/day with NO headaches.

woodiebob
New Member


Date Joined Aug 2017
Total Posts : 6
   Posted 11/17/2017 9:45 AM (GMT -7)   
This past Sunday, November 12th, marked five months without a CH. Prior to using aromatherapy during night and most of the days, the longest relief that I had enjoyed was less than six weeks.

I am still taking verapamil 240mg 1Xd and lithium carbonate 300mg 2Xd just as before. My only change was the aromatherapy.

Granted, this may be just a coincidence but I am someone who does not believe in coincidences. You can buy diffusers on Amazon for around $25.00 and get essential oils at Target, Bed Bath & Beyond or health food stores pretty inexpensively.

If I was reading this note, I am not sure I would believe it, but since I am the one who has lived through it, I believe 98% sure that my improvement is from the AR.
Onset of Cluster Headaches in 2011 at age of 64. Preventive medications Verapamil and Lithium Carbonate. Treatment medications: Migranal, O2 and Ergotomine. Normal start at 2:30AM and last about one hour. Intensity ranges from pain level 6 to 10 with most at 8. Since June 12, 2017, have been using aroma therapy about 8 - 16 hours/day with NO headaches.
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