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BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7329
   Posted 12/29/2017 4:45 PM (GMT -6)   
Hello all!

Just recently I started looking for a pain management doctor because my GP will no longer prescribe the Tylenol 3. This was my rescue med for the days of 10+ pain. I used about 40 tabs in 6mos. Still he is refusing. Said he is not writing for anyone.

So as my neuro does not write narcotics what choice did I have.

I found a pain group with a trauma neurologist. When I saw him, no narcs. However, he presents like no neuro I ever met. He is outgoing, aggressive in treatment, has 2 games in the works already. Increased one med and I have some relief, will see him 1/17/18 and see what is the text step.. He was procedures I have never heard of, and I keep up on treatments fairly well.

Ketamine is one that we are considering, however, Insurance ,may not cover it.

Point is, never give up looking for the doctor who wants to help you!

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16064
   Posted 12/30/2017 4:20 PM (GMT -6)   
I hope you have luck getting what you need. My migraines tend to be hormonal so they come and go depending, but I've had luck with anti-depressants, ponstel and birth control pills. I have allergies to pain pills so I try to avoid them. The majority of migraine specific medications I've tried haven't been too effective unfortunately. Let us know how you do.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Sunflower98🌻
New Member


Date Joined Dec 2017
Total Posts : 18
   Posted 12/31/2017 10:21 AM (GMT -6)   
Hello as I’m new to healing well but have introduced myself in the bipolar forum as I fit into at 5 forums so far. So Im not sure if I should go into all the details as I did in the forum. I hope that the new meds work for your migraines hun.

I have had chronic migraines since I was 19yrs old. I have been on 7 different migraine meds in the past and 3 different preventives in the past. For the past 5 yrs I would only get 1 a year til his past September which is when my dad started to go down hill fast from lung and brain cancer which he passed on October 4th. Since September I have had 2 to 3 migraines a week up til 3 weeks ago.

I thought it was stress related but every I had one which was seen by a doctor my bp was very low usually 80/60 for the most part and the doctors thought maybe stress the low bp then blood work showed low vitamin d3 and potassium. I have imatrix and zofran just in case one hits again. I was about to give up but still confused as to what caused them.
Cindy
Bipolar1,generalized anxiety disorder, PTSD, Social anxiety with agoraphobia, Impulse control disorder, Severe Insomnia, fibromyalgia, migraines, hypotension, hypokalemia, PCOS, Endometriosis, Disc disease in back, kidney stones, vitamin d3 deficiency, chronic pain, and waiting for diagnosis of chronic fatigue syndrome. Meds: lamtical, klonopin, mirtazapine,zanaflex,vitamind3,potassium, etc

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16064
   Posted 1/1/2018 4:01 PM (GMT -6)   
Hey Cindy, I am sorry to hear you're struggling with migraines. What did you try for a preventative? I did really well on pristiq, but eventually I didn't feel a daily preventative was warranted because my depression wasn't as severe and the migraines weren't happening that frequently, but it helped me a ton when I needed it, and I would take it again if my migraines were frequent. I have had good luck with hormonal control too, but the hormone options have ups and downs for me depending on the time of the month. Welcome to HW. I hope 2018 is a start of good health for you. So sorry to hear about your father. sad
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Denis - RYS
New Member


Date Joined Jan 2018
Total Posts : 1
   Posted 1/3/2018 10:27 AM (GMT -6)   
Just on the quick note about prevention. Getting those neck, and shoulder muscles to be relaxed and head position held up straight, can be very successful prevention. You can stretch your back like you do it in the morning, very nice is to hang for a 30s or so with your hands maybe held to the top of the door frame. You can also bend your shoulders backwards as if you would want to hold the basketball with your shoulder blades, squeeze your fists and belly, and hold your breath for some 30-45sec. 3-5 times
I have number of friends that are able to avoid migraine 80% of the time, doing just one of those things, as long as the catch timing (few min) before real headache, when it's really just gently, but when you had many migraines before, you exactly know where it is going. But you probably know yourself, don't do any of those when headache as started already.
Good Luck
Denis

Post Edited By Moderator (notsosicklygirl) : 1/3/2018 12:44:18 PM (GMT-7)


BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7329
   Posted 1/3/2018 2:59 PM (GMT -6)   
Welcome to the new members!

I have just found an alternative pain control that works for me, if I use it before the pain gets severe.

Monday I have to go to the ER because doc refused to refill Tylenol 3, even so I used 40 tab in 6-7 months.
did not matter.
Now the ER where I have history will NO Longer use narcotics. So as a result I left the ER with a level 3 because I refused to stay any long and the compozine was making my antsy inspire of the benidryl.

A nurse told my husband about GREEN OIL. I picked some up. and rubbed a small amount gently on each temple, it did decrease the pain.

I picked mine up at a local Asian Market. I am sure it can be found on line.

It works for me, can not say it will work for everyone. Just wanted to share. It is inexpensive.

peace
Trina

/www.facebook.com/photo.php?fbid=10208508526231109&set=a.1166015651006.20375.1846355780&type=3&theater
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16064
   Posted 1/3/2018 6:58 PM (GMT -6)   
Wow, that's interesting and I've never seen it before. I will have to give it a try. Looks like they sell similar products on amazon.
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6180
   Posted 1/3/2018 7:48 PM (GMT -6)   
You might also try Tiger Balm. Its main ingredients are camphor and menthol topical. You can also try Bengay: Muscle Pain/Ultra Strength contains 30% methyl salicylate, 10% menthol, and 4% camphor) - which is more like Green Oil. I've used both of these for bursitis in my hips but I never thought of using them for headaches or migraines. You would rub a bit on the sides of your temples in that case but avoiding the eyes of course.

The bottom line is check out the ingredients of all these products and you may find something in your local pharmacy or supermarket.

I hope you all find relief.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Check out the following site for more info on blood sugar:
www.phlaunt.com/diabetes/

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7329
   Posted 1/8/2018 1:55 PM (GMT -6)   
Great suggestion Lanie!

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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