Severe headache and dizziness after endoscopy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MacKenzie86
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 5/6/2018 12:10 PM (GMT -6)   
Hi everyone,

Three weeks ago I had an endoscopy procedure. I've been dealing with a chronic mystery illness since I got sick last July in Thailand. The Infectious Disease doctor wanted to have me undergo an endoscopy to check for Whipple's Disease, which came back negative.

I was very out of it the day of the procedure from the medications they gave me for the conscious sedation (Versed and Propofol), but the first thing I remember was waking up with an excruciating migraine, dizziness and loud ringing in my ears that wasn't there before the procedure. I can't even begin to explain how much pain I was in. I couldn't handle the lightest sound or any kind of light. It lasted for five days straight. I went to the doctor and he prescribed me anti-migraine medication, which did nothing. Eventually, the symptoms calmed down.

about a week and a half later I developed very severe abdominal pain and nausea where they took the biopsies in my stomach. I ended up in the ER because of this but after x-rays and blood work they said there was no sign of intestinal proliferation, which they initially suspected. I still have the stomach pain and nausea but it comes and goes in waves.

about two weeks after the procedure I developed a very sore throat, excruciating headache, pain in my eyes, terrible muscle/body aches throughout my entire body, vertigo, weakness, and night sweats. It feels like I have a bad viral infection or flu and have been bedridden the last four days. I'm just feeling worse every single day. The doctors acknowledge that my health has completely declined since the endoscopy procedure but have no idea what's going on and just brush me off as they say there is nothing they can do for me.

Has anyone experienced anything similar to this after an endoscopy procedure? My only two thoughts are that 1) I'm having a bad reaction to the medications that were given to me (my doctor said the anesthesia might have just put my body over the edge), or 2) I developed some kind of infection from the procedure.

Any insight would be incredibly helpful, thank you. I am a 31-year-old female. I am 5'3" and weigh 95 lbs (having malabsorption issues that started in Thailand, which is what I am trying to figure out, hence the low weight).

XX

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7515
   Posted 5/6/2018 6:23 PM (GMT -6)   
I am truly sorry.

I can only suggest trying another infectious disease doctor that specializes in asiatic diseases.

Never give up, keep searching. Not every doctor nows everything. This I learned this getting answers to chronic pain.

Peace strength and prayers.

Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

MacKenzie86
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 5/7/2018 10:18 PM (GMT -6)   
Thank you, Trina, for the encouragement! It means a lot. I'm in the process of looking for another Infectious Disease specialist.

xx

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7515
   Posted 5/8/2018 11:55 AM (GMT -6)   
You are welcome.

I understand the frustration, the waiting until you have the emotional strength to start looking again. Asking nurses at the ER when you have to go.

Just never give up, there is a doc out there that can help, it is a matter of finding one, even if you have to out of state.

Peace and strength.
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Beachbumgirl
Regular Member


Date Joined Jan 2016
Total Posts : 61
   Posted 5/10/2018 9:32 AM (GMT -6)   
Hi MacKenzie86-
I’m sorry you are going through this.
My thoughts are the same as Bnotafraid. I would find the BEST Infectious Disease MD in the USA
and discuss you case with him via email/ his office before going there. I believe it is something from
Thailand you acquired. Incidentally came on after your trip. I would also get a copy of all your records so far so the MD knows what has been done. Small hospitals don’t have the ability to run testing that may have to be discussed with the CDC. You will find very good mds in their fields all over the web. They will be in the big teaching hospitals.

I wish you the best! Please keep in touch.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 9:30 PM (GMT -6)
There are a total of 3,006,673 posts in 329,376 threads.
View Active Threads


Who's Online
This forum has 161843 registered members. Please welcome our newest member, Shield of pistis.
301 Guest(s), 8 Registered Member(s) are currently online.  Details
SoMuchFun, Mustapha, Tredye, Pratoman, Chutz, Cajun Jeff, (Seashell), Sahale