Please help non stop unbearable eye pain and visual problems

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Regular Member

Date Joined May 2018
Total Posts : 59
   Posted 6/25/2018 4:15 PM (GMT -6)   
I don’t even know if this is where I should be posting I’m just beyond desperate for help. I have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists had an mri ct all with no avail. The last few months it’s became debilitating progressing so fast I have no idea what to do. Having to lay in bed with a wet cloth on my eyes for hours upon hours because of the pain. My eyes have became red also all the time. I’ll try and describe the visual problems or at least what I can think of there’s so much. Terrible visual afterimages constantly seeing everything you look at repeatedly, seeing clear outlines of everything you look at whenever it’s bright, tons of floaters, white dots everywhere whenever looking at the sky or anything bright, flashes of light all the time from white to blue or black. Even when I close my eyes I always see blue light even when I’m a dark room with my eyes closed for hours I can’t ever get rid of this. I never heard of anyone seeing blue like this all the time with eyes closed. Also have an arc of light in the side of my right eye almost all the time, extremely bad light sensitivity, if I see any glare of light or head or taillights or anything it gets burned into my eyes for minutes. I cannot find help it is progressing so fast I’m beyond terrified. I can even look at my phone or anything and look around and see a black outline of whatever I was looking at for minutes. There is so much more going on with my vision and head pressure and so much more I could never list it all. Some of the other problems are weird pains and feelings in my head muscle twitches almost nonstop sometimes almost feels like something leaking in my head, losing feeling of limbs very regular and so so much more. If anyone has experienced anything like this please help me. I have lost all faith in the medical field just keep getting put off months at a time. I Pray more than anything for healing. Please anyone that can help please. Thank you

Forum Moderator

Date Joined Apr 2012
Total Posts : 7515
   Posted 6/28/2018 2:25 PM (GMT -6)   
Welcome to the forum Aaron

You mentioned multiple specialists, did this include a diagnostic eye specialist and a diagnostic neurologist?

You must realize that what I say is from my experience only. I am in now way clinically trained in the medical field. Ok?

First calm down, 99% of what we fear, never happens. It is the unknown factor that produces the fear and we can not control that.

I have ocular neuralgia, along with chronic daily migraine pain. Stress will only increase the pain.

You might be experiencing in colors are auras, I have them all the time, like a kaleidoscope! 30 min every morning, I can barely see. I have learned to meditate and enjoy the colors till they dissipate. You may be experiencing some kind of migraines I have never heard of.

Also I have allergies that cause severe head pain, I am allergic to food dyes, yellow, blue and red. So I have to read all labels when food shopping, you start to learn what you can and can't eat. It is frustrating at first because that crap is in everything.

I put myself on a whole food diet. NO artificial ingredients, 32oz of water a day, with fruit juice to mix it up sometimes. Lots of dark greens, roasted veggies, red meat is a rarity. Lots of grains.
I think it helps a lot. NO caffeine, peanut butter, chocolate, reduced salt and sugar, potato chips .

I urge you to keep looking for a doctor that will help you, call and make appointments and the best hospitals around you, go out of state as far as you can afford.

Stay off the internet and self diagnosing, that will only make you catastrophise.

I want to share a link with you about how to reduce pain and become accepting of it, while you are searching for an answer. It has taken me 10 years to get correct dx and treatment. Now without Tylenol 3 for break thru severe pain, I am going on a medical marajuana program. We will see. I just keep trying.

Aaron I urge you to look at this site and read some of the articles if possible or have someone read them to you. I use mindfulness everyday, I could not function with out it.


I wish you strength and peace

Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Post Edited (BnotAfraid) : 6/28/2018 1:28:48 PM (GMT-6)

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