debilitating eye pain and visual disturabances

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Aaronh819
Regular Member


Date Joined May 2018
Total Posts : 59
   Posted 7/16/2018 9:09 PM (GMT -6)   
First of all I have been clinically diagnosed with lyme. But my worst symptoms that continually have gotten worse are debilitating eye pain and visual disturabances. Even my lyme doctor doesn’t know what to do about this. Have had two ct scans two mri, one just recently with contrast from a neurologist who wanted me to see a neuro opthalmologist who did hardly anything and just said silent migraines or something like that and told me to go back to the same neurologist. Never really even let me explain what’s going on. From what the neurologist told me it would not cause constant severe eye pain and visual disturbances. So many visual problems I could write a book the worst being severe after images flashing lights light sensitivity floaters, seeing spots and shadows that aren’t actually there, clear silhouettes of many many things I look at when I look away Sparks of different colors of light always seeing light when I close my eyes especially blue, and no matter how long I’ve had my eyes closed there’s always light burned into my eyes . The eye pain is there when I go to sleep and even worse when I wake up. Literally feels like someone is taking a torch to my eyes most of the day all day. I am beyond thankful to God that they haven’t found anything that would need surgery or anything like that I just wish they knew a medicine or treatment that could help it is beyond frustrating to be in so much debilitating pain and torment with the pain and visual disturbances and not get any help. I am a true believer God still heals with everything in me I know sometimes we need a little help. Please if anyone has any ideas or has heard of anything like this that could help it would be beyond appreciated

Post Edited By Moderator (notsosicklygirl) : 7/16/2018 9:17:55 PM (GMT-6)


BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7515
   Posted 7/20/2018 8:39 PM (GMT -6)   
Sorry you have to deal with this plus Lymes.

Did anyone on the lyme forum suggest any thing to help?

My best suggestion is to find a Neurologist that works with a pain group. I see one that does and I received lidocaine shots in the back of my head every 4 weeks to prevent complex heads, and reduce daily chronic pain.

I always have auras of some kind going on. No one can explain why, best guess is physical abuse in childhood, but not certain.

I wish you the best.

Do not give up, keep going to doctors, be your own advocate until you find a treatment that gives you relief.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7515
   Posted 7/20/2018 8:39 PM (GMT -6)   
Sorry you have to deal with this plus Lymes.

Did anyone on the lyme forum suggest any thing to help?

My best suggestion is to find a Neurologist that works with a pain group. I see one that does and I received lidocaine shots in the back of my head every 4 weeks to prevent complex heads, and reduce daily chronic pain.

I always have auras of some kind going on. No one can explain why, best guess is physical abuse in childhood, but not certain.

I wish you the best.

Do not give up, keep going to doctors, be your own advocate until you find a treatment that gives you relief.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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