Welcome to the forum.
And YES you are not alone.
I have the diagnosis of complex migraines. Just had one 2 weeks ago. Had to pull into a fire station because I was sure it was a stroke. The side effects for me last a day or two, just a little weakness on the left side.
I use medititation and mindfulness exercises to reduce my anxiety after an episode. I recommend these skills.
The only way to tell the difference between full onset CM and a stroke/anuerism is to do 2 CTs one with contrast and without.
Now that I know I have them I can hopefully stop them from going full blown.
Stay out of the heat and sun even with sun glasses
Learn to reduce stressmindful.org
If pain starts use your rescue med, get in a dark room lay down
ice or heat which ever works for you.
I COMPLETELY understand your anxiety. Without being able to speak you cannot tell anyone what is going on and the pain just gets worse.
And I am here to tell you the CM pain is worse than any pain I have had and I have. trigeminal Neuralgia!
Life is not easy with these type of diagnosis, however, we learn to cope and deal with it. You can lead an active life once you get the hang of it.
Peace and Strength
Moderator - Depression
"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
Post Edited (BnotAfraid) : 7/28/2018 1:48:03 PM (GMT-6)