I hear you loud and clear about
docs being so darn careful for what they give patients these days, it's as if those that do abuse the system and try and get lots of drugs hurt those of us that truly need to take them
I have had migraines for years, and was dx with lupus and fibro over a year ago - that changed many things for me, but I still have these headaches, and it's a coin toss as to who is going to deal with the headaches and prescribe the meds. My PCP thinks I need to take something on a daily basis to get stop the headaches from coming, so I've tried many things from trycyclic anti-deps to bp meds and so on, his latest was depakote. THAT was horrid, I couldn't hardly walk down the hall, my head was so off kilter.
I do have Zomig, but with that med, you trade one set of symptoms for another. Before that I had Imitrex, but at the time was on Paxil and suffered from serotonin serum sickness (no kidding). so we found Zomig and I got off the paxil and all anti-deps... I also have 10mg tabs of phenergen when the headaches are bad. That's it - and I can't take motrin because of the lupus...I do take ultram for pain with the fibro, stress make it worse, I can then take more ultram, but we are to the point that the ultram doesn't touch the migraine.
What works for me...I found through my mother, the 5mg of Zomig (sometimes another 5mg 2 hours later, but that's all that is allowed in a 24 hour period) and 2 500mg tabs of hydrocodone (she has back arthritis and has had this prescribed for her). I sleep like a baby for a while, sometimes (more often than not) the 2nd Zomig is taken, and then I finish the 24 hour period with 2 more hydrocodone and then tylenol. It eases the pain, but the migraine is still thre, I can just move around a bit.
My PCP says the next step for me is topomax or neurontin -well, they had huge side effects too, but he is adament that he will prescribe NO narcotics.
My rheumy says if that's what works for me, then I should take htat, but she doesn't prescribe it either, so I don't have it AT ALL, and now I am out.
As for going to the ER, that's a big deal when you are in the military and the pay and all that stuff...going up to the pos is an option, but it's over 30 miles away...
I usually wind up curled up in my bed waiting for a break from the pain. I've had a serious headache for day #3 now, out of other meds, one more Zomig but I don't want those symptoms either, so I am taking tylenol like candy. I see the rheumy on Monday and am hoping for a referral to a pain management specialist. It's such a drag for docs to take so long to treat the issue at hand.
"Even though I'm walking through the valley of the shadow - I will hold tight to the Hand of Him who's love will see me through... And when all hope is gone and I've been wounded in the battle...He is all the strength that I will ever need, He will carry me..."
dx lupus, FMS - 2004
sjogrens - 2005
RLS, Anxiety, Migraines, Allergies, Carpal Tunnel Syndrome, IBS
meds - Plaquenil, Zelnorm, Klonopin, Seroquel, Zomig, Ultram, Zyrtec, Flexeril