signed up to this message board to see if i can help others
im 20 years old, had CDH for the past 5 years, and before that had a lot of stomach problems which were nicknamed "Migraine Tummy".
for my CDH, ive tried so many different drugs, triptans, zomig, gabapentin, etc. None of which have helped me at all
i did some research on the internet and found that Botox injections were being used to treat CDH, but were not a registered treatment
i decided to risk it, i went private, paid £250 +vat to see if this treatment was as good as it was stated. had 8 injections of botox in my forehead, then 8 from my trapezes up to the back of my head.
near enough instantly i felt some relief, and later on that week my headaches went completely! i was so happy.
the botox injections last 3-6 months i think, im not sure if thats only for the first time or everytime, but my CDH has come back and i am having more injections on Tuesday. The cost is a lot, but im prepared to pay it to stop suffering
Im not sure if anyone here is from london area, i had them done in a private hospital in guildford by a Dr A J Dowson.
look into these injections, they have helped me out a lot, it could help some of you out