hey, i'm a19 year old lad from england and i've suffered with sporadic hemiplegic migraines since i was 9, i've never met anybody else with the condition purely because my doctors don't know of anyone else my age being diagnosed. my hemiplegia is extremely rare, i don't suffer with headaches or nausea, in fact i don't have the majority of hemiplegic sypmtoms, i just suffer with full body paralysis, it gets that bad that i have difficulty breathing. the docs have done all kinds of tests but can find no cause for it, i'm just trying to see if theres anybody out there who suffers the same as me. i've grown to accept it, now i just sit back and watch dvd's till it wears off (worst case, 36 hours).
last year i started writing a book, and i decided to highlight the disorderby giving it to the main character, just to show that although it may disable a person completely, even down to not being able to smile or lift their eyebrows, its only temporary, and no matter how different you may be to the rest of society, anything is possible.
if anybody would like to email me directly my email is: