I have been a migraine patient for almost 5 years. We believe my first migraine was September of 2001, but was not diagnosed as so at the time. I was lucky enough to find a wonderful man who loves me despite of me always being “sick.” He and I have reached the end of our rope when my migraines all but ruined our honeymoon this past February. I am writing this because I don’t know where else to go or what else to do. I need help and I am hoping someone can do that, I can’t keep living like this, it is not fair to me or my family.
I figured I should list what has been tried over the last 5 years. I have seen numerous neurologists, most while I was in the service. I have had many MRIs, CT scans and EEGS, all of which have been normal. I was told on an MRI in May 2005 that I had calcium deposits on my brain, but that it was not anything to be concerned about.
Here is a list of medications that have been used for both abortive and prophylaxis for my migraines:
Phenargan 25-50mg PO/IV/IM, Toradol PO/IV/IM, Maxalt, Imitrex PO/SQ/nasal, Elavil (max 100mg QHS), Zomig, Compazine, Zoloft Fioricet, Ultram, Depakote, Cafergot, Nadolol, Reglan, Verapamil (max 80mg QD), Stadol, MS-contin, Buspar, Pamelor, Predinose tapers, DHE-45 IV/IM, Migranal nasal, Ativan, Valium, Decadron, Nubain, Droperidol, Relpax, Topamax (max 150mg BID), Neurontin (max 300mg TID), Zonegran, Botox injections, Paxil, Benadryl, PT & Spinal manipulations, Zyrtec, Frova, Cymbalta, Geodon, Keppra, Benicar, Cataflam, Trazadone, Magnesium, Vitamin B-2, Lunesta, Ambien, Psychiatry and Psychology care, acupuncture, NMT
As of this letter, I am no longer on daily medications. I have PRN phenargan, Imitrex PO/SQ, and DHE-45. My migraines do not typically change in presentation. I have pain behind both eyes, with is a very intense throb. I usually have associated nausea, vomiting, photophobia, audiophobia and halos around objects. I have had numbness and tingling in my fingertips and toes for almost 2 years now, and was told it was related to the high Topamax dose I was on. I, unfortunately, have had too many visits to ERs and Urgent Care Centers for acute treatment. I am tired of this and need to find another avenue. I currently have massages about once per month to try and relieve the tension.
If anyone has any ideas, or something that may have worked for you, I am reaching out here. I will be visiting the Headache Care Center in Springfield, MO the 2nd week of May to see what may be able to be done. Any help, hope, or support you may offer me is so much appreciated, people that don’t have these try and understand, but they will never understand it on the level that you all do. Thank you!