Devastating Migraine with double vision and no sleep

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MagsMoo
New Member


Date Joined Apr 2006
Total Posts : 2
   Posted 4/8/2006 2:05 PM (GMT -7)   
confused  
Over a year ago I had lasik surgery followed by double vision in each eye and both eyes the next day.  Second lasik surgery followed a few weeks later and the doctor was dismissed from practice the next week. My new doctor says no connection between her leaving but doesn't understand why the second surgery was done so quickly. Severe headaches started 3 months later with loss of balance and inability and had to be hospitalized and put to sleep and on drug therapy with pain in right eye.  Double vision was worse.  MRI could not show close enough but Optic nerve was suspicious.  Months later it appeared ok.  But pain continues.  Double vision remains but I have learned to adjust with physical therapy when standnig upright.  On high doses of epilepsy RX for head pressure but pain awakes me every few hours when I lay down at night in spike of maximum dose of ambien.  I have to sit upright for 2 hours at a time to relieve pressure.  Right eye is protruding forward moreso than before (looking at photos).  Any ideas?  Doctors say next step is to go on vicodin but I am young and that would be for rest of my life.  I have been a burden to family long enough and eatten away at our savings.  Seen so many doctors; fought so many battles.  Run into so many walls (litterally).  Been to University of San Francisco and was told to go on narcotic treatment to just dealwith the pain.  That was all that I had left.  That is no life. 

MagsMoo
New Member


Date Joined Apr 2006
Total Posts : 2
   Posted 4/8/2006 7:00 PM (GMT -7)   
More info - Lasik might be irrelevent because the pain is worst between 9pm and 9am when eyes are closed but head is laying down. However, double vision is when I am laying down. Prisms do not help the DV at all. Every angle would need a different prism. RIght eye hurts to touch and I'm sensitive to light and sound but it is 100% if time. Migraine meds do not help. Currently on high dose of topomax and ambien cr but they can't go much higher on topomax. Pain too great to sleep through ambien. Can't take any kind of SSRI's. Steriods made me gain 40 pounds. I was in terminal ward for awhile. Want to live, but not like this.

open-minded
Regular Member


Date Joined Mar 2006
Total Posts : 62
   Posted 4/8/2006 9:28 PM (GMT -7)   
don't give up- you have plenty to live for. your fam loves you!

have you been to a neurologist?

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 4/9/2006 3:57 PM (GMT -7)   
Mags...
I am not sure what to say...I don't know specifically what is wrong as i am not a physician.
 
I can tell you that I have been very ill and there were times that I did not want to live. I am 25 years old now and I am doing better. I know that there are still going to be times that I am sick and it is going to be a struggle to get up out of bed and continue on from one day to the next.
 
I believe in God and I have a dog that I adore more than anything in the world. I also have friends that are my support system (my family is less than understanding when it comes to my specific illness) The point of all of this is that you have to find something or someTHINGS that keep you going, the things that drag you out of bed when you think nothing else will...and try to focus on that. If it is painting, or writing or listening to music or a cat...whatever it might be...you have to have something or someone to lean on and pull strength from. Know that you are loved and worth something- we all are.
 
There has to be something to give you some type of relief...there is a reason you are here.
 
Hang in there sweetie
 
Sara
Sara-Migraine/Headache Forum Moderator
 
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