Hi all
Just found the forum....wasn't going to post yet, mainly cos I am having a bad spell at the mo, but decided to jump in and say Hi
I was diagnosed with Sparodic hemiplegic Migraine a year ago it was thought that I had had a stroke. Had MRI, CT scan and lumbar puncture they came back normal. Neuro diagnosed SHM. Since then I have several attacks a week usually hits my left side sometimes total paralysis, no head pain and other times just weakness and migraine pain. There is no pattern. Tried Epilim, beta blockers which I have cos I also have Hypertension, Inderal, metopropol (spell???) amytriptalene...can't take triptans although saying that I have seen a neuro in London recently and he as prescribed a triptan...tried it yesterday and today not touched my head in fact i would say it is worse!!
Also going to try Epilim again but at a much higher dose than I have tried before..but can't take for another 3 weeks cos I need paracetomol outa my system for 6 weeks also diagnosed medication overuse headache. Saw GP yesterday had a bit of blow cos she as suggested I defer my exams until Aug when hopefully the meds are doing something. I am at Uni doing Herbal Medicine degree (mature 44 year old student). Like I said I have hit a really bad patch can't shift my head enough to study anymore. Really don't like this beating me and finding it difficult to give in.
There is not much info out there on hemiplegic migraine mainly cos it is rare and neuros don't understand the condition much either. Also there is no specific med for it, which doesn't help... Tried herbal stuff to no avail as YET!!
Anyway Hi to all...can't write anymore need to sleep.
Will stay in touch and maybe I can be of help to you guys out there in cyberspace
Love and always HEALING
Von XX