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AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 5/20/2006 12:22 AM (GMT -7)   
sad  I'm just tired. I just recently had yet another ER visit. Terrible migraine, blurry vision, tinly arm. of course, they do CT that is normal. They ask me nothing about what works and come back with ativan and something I've never heard of. Eventually I cry myself to sleep but have leg cramps for days from the shot. My doctors are tired of treating me. My parents are tired of me needing treatment. I'm just tired. Its getting to the point where I feel doctors don't even believe me anymore. One visit He feels the need to share how much money its costing, and that "you obviouslly don't have any controll on these headaches". Really? thats why I'm seeing you. I'm doing all I know to do. Diaries, preventatives, Neuro appointments, diet change, no job for less stress, taking Imitrex shots, trying not to take Narcotics. Nothing is helping. So after 24 hrs of pain, I finally just resort to a pain shot, and they docs get mad. Just the other day, I passed a Kidney stone. I was in horrible pain, but for some reason the test didn't show a stone. Only stones in the kidneys. The docs send me home, litterally crying harder than when a friend died, and when I asked them what they suggest,"Go home and hope it goes away." I'm so tired of every test being normal. I know its good and means nothings wrong with me, but my goodness something IS wrong with me. If doctors can't see it, they think its not really there. then, b/c of my migraines I have a tollerance for pain meds, and the normal dose for most people, doesn't touch my pain, and they think b/c I ask for something stronger or more, I'm just a drug seeker. I see myself becoming a drug seeker, not for the "high" but just because I want a few moments of relief. Is that so wrong??  I'm tired of not being able to function, not being able to enjoy life, not having a life. All I know is pain and frustration and I'm tired.

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 5/20/2006 2:08 AM (GMT -7)   
Hi AngMichelle, I just know how you feel!! To start with have you printed off one of tysmyboo's forms for the Docs to fill in to take to the er? That should take the 'druggy' thought away from the medics and allow them to treat you more efficiently without destroying your self-esteem!!

Have you ever seen a Neurologist, especially a Neuro that specialises in Headache/Migraine? If you haven't I strongly suggest you do.

This disease is exhausting for everyone, and I know I keep forgetting that my family are probably just as cheesed off with it as I am! Hang in there girl, when I am in a bad run I just long to be able to function again and feel frustrated that it takes sooooo long to come back, but it does even if I have to wait a long time. I call it 'someone's run off with my batteries and I want them back!!!' lol The more I get stressed about not functioning the more I don't function and it becomes a viscious circle and one feeds off the other. Keep us in the loop about how you get on, take care Ann.

JanetChristine
Regular Member


Date Joined May 2006
Total Posts : 26
   Posted 5/22/2006 3:50 PM (GMT -7)   
I know all too well what you are going through....All I can say is hang in there....I know how it feels to go to the ER and get the looks and the attitudes that you are a drug seeker -- I have been there too many times to count. I too am tolerant to medication due to both migraines and a back injury that I had successful surgery for. Have you been to a pain clinic? Sometimes they are better about understanding the tolerance levels that we build up. If you are seeing a neurologist I would recommend seeing another one! I don't know if you have a big clinic with a choice of docs or not. I didn't when I was living in South Dakota but since moving back to Rochester, Minnesota I am being seen at the Mayo Clinic so there are LOTS of docs around. I am seeing my neurologist on Wednesday to see about nailing down a plan for the migraines. BOTOX and Fentanyl suckers most likely. I am here if you want to talk. Hang in there..... Thanks also for setting hello kitty straight on the pain med thing!
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