hemiplegic migraine

Hi Pixy, Welcome to Healing Well. Sorry you are going through all this. As Hemiplegic Migraine is so rare there are few sufferers around, but I am sure that before long someone will respond with better knowledge than mine. Was it the Neuro that diagnosed you? If it was he should be able to give you a good idea of what to expect himself.

Please keep in touch as to how you get on, I know it can be very scary but you can vent here whenever you like, you will be in my thoughts and prayers. Take care Ann.

hi ann, thanks for the reply and kind words, just to let you know the count has now gone up to 19 attacks,  back to using a walking stick again.  i have got to see the neuro doc in about 8 weeks for a check up [from the neck up ha ha]

I don't know if this will help, but ... My wife has a family history of "fits", as she likes to call them.  Her mother, grandmother, and aunt also have these "fits".  They had no idea what they were, they always went on the medical information that her grandmother received 50 years ago, which really amounted to NO HELP.  During these fits, her hands and arms go numb, she gets a headache, she becomes somewhat disoriented, and she sometimes will lose her speech.  This past week, she had a clonic-tonic seizure, which was unrelated, according to the ER doctor.  But based on the information that we gave to the doctor, including her family history, he has been the first person that we have seen to put an "unofficial diagnosis" to the "fits".  In her case, it is familial hemiplegic migraines.  We're going to see a neurologist next week because of the seizure, and hopefully he will be able to provide a little more information regarding treatment and prognosis.  We are fortunate in the fact that the migraines are not frequent, and she may go years without experiencing one, but we still feel like we need more information in order to move forward. We will be praying for your difficulties, and once we get some answers, we will hopefully be able to share them.