I had no idea there were other people out there that had this same exact thing going on. My migraines were so strange that I didn't even want to tell teachers what was going on with me b/c they would look at me like I was nuts.
I have had migraines with numbness that begins in my right hand or right side of my face. It can travel up my arm, into my mouth and throat (at that point I feel like I can't breathe right...but I think it's just that the numbness feels so weird). The numbness can be just tingling or so numb you could chop a finger off and I don't think I would feel it!. I usually get very confused. SOmetimes I can't speak or if I can my words come out messed up. I forget important things like my own phone number. ONe time I almost fell over from weakness on the right side of my body. Rarely I have vision disturbances. One time my right arm felt so weird I couldn't even look at it....it was like it wasn't my arm (strange). ONe time I had messed up hearing....people sounded as if they were talking to me out of synch or from another room or something. I used to have very bad light sensitivity. I used to throw up too. During really bad migraines, sometimes I experienced strange mood swings. After the pain and everything is gone, I still have pain if I sneeze or cough or move my head to suddenly. I also used to get what I call, "flash" headaches.....where for several weeks after a migraine I wouild experience a few brief but extremely sharp flashes of pain in a specific part of my head.
Oh...has anyone experienced this part.....after the migraine you are really hungry and have to eat right away? My mom and I are both like this. Also...it takes me two or three days to feel like my body is back to normal. I can't describe it well. But after a migraine, it's like I'm wiped out for the next couple of days
They were really bad in my teens and through highschool. Sometimes I got them every other day for a week. Now I am 30 and can go two years without one. The last one was when I was pregnant (3rd trimester). THat was aweful b/c for the first time I got the numbness on the left side and the headhache on the right (reversed from all of my other headaches). I thought that b/c of this reversal that maybe something was wrong in the pregnancy and wasn't sure it was a migraine....ended up calling 911. The headache before that was the day I went home from the hospital after giving birth. I am thinking that pregnancy and childbirth are triggers for me now....hormonal?
The worst thing of all is that every time I am about to get a migraine the first symptom I have is this feeling like, "oh crap...here it comes" It's just this really uncomfortable feeling that I can't explain. There is nothing like it. I just feel it coming on. The only way I can try to communicate it to others is that it's like every inch of my body is sick....all the sudden I feel it everywhere.
SOmetimes I get the numbness and other symptoms and get no headache at all.
As I have gotten older, the painful part of the headache is more easily managed with over the counter stuff (never could have done that before).
My mom had this very same kind of migraine too. My brother and dad are prone to headaches also, but not this kind.
DOes anyone know if the mayo clinic is looking for ppl with these types of headaches still?
Does anyone have these same symptoms with a diagnosis? I have never had a diagnosis for what type of migraine I have. I saw two neurologists when I was a teenager.