PFO clinical trial anyone?

lilmoe76

Regular Member

Joined : Apr 2006

Posts : 26

Posted 6/29/2006 4:20 PM (GMT -7)

my neurologist is heading up a trial regarding the relationship between the PFO (some type of hole in the heart) and migraines. he asked me if i wanted to participate. it involves plugging the hole (if you have it) and seeing if that works. (sounds scarey to me) some people have it and some don't. apparently they came across this helping headaches in stroke patients.

has anyone heard any info on this???

JanetChristine

Regular Member

Joined : May 2006

Posts : 26

Posted 6/30/2006 6:26 PM (GMT -7)

In my searching for information on my migraines I came across a clinical trial information website that had the PFO Closure trial on there. It was www.clinicaltrials.gov -- you just type in "migraine" and it brings up all the trials currently going on. There are a few of the PFO closures on there. Also I don't know if you have tried google.com but that brings up a whole bunch of stuff when you type in "PFO closure trials". That's all the info I have on it.

It sounded kinda scary to me too!!!

History:

Migraine with Aura, Familial Hemiplegic Migraine, Degenerative Disc Disease, Hemilaminectomy L4/5, Depression

Current Meds:

Celexa 40mg, Wellbutrin 300mg, Topamax 200mg, Ambien 10mg PRN, Phenergan 25mg PRN

Meds for Migraine episode:

IV Fentanyl 100 - 200mcg, IV Phenergan 25 - 50mg

tysmyboo

Veteran Member

Joined : Dec 2004

Posts : 921

Posted 7/4/2006 5:34 AM (GMT -7)

NOT SCARY AT ALL...

I went to the local university about two years ago...

they did some tests, the most painful thing was the IV-if you have migraines you have been through worse!!! guaranteed.

I can't remember it all now, but I filled out some paperwork, questionnaires, and of course releases (in case they killed me- JUST KIDDING!) I went down and had an IV placed into my arm?, they did an ultrasound of my heart while they injected bubbles into the IV and made me breath certain ways to see if the bubbles came out of the suspected hole in my heart. I was actually DISAPPOINTED that I didn't have PFO because that meant to me that there might have been a possible chance for a "fix" (I realize now that there was a lapse in reality when I thought that-but anything is possible???) I really was in a bad place at the time and nothing was working so this OPPORTUNITY meant that something, just anything might work and just me a chance for some relief...and when they told me I didn't have a hole in my heart- most people would have been relieved...I was disappointed...a hole in my heart would have meant relief for the unrelenting pain in my head!

Now, I wait for the next possible chance for a miracle?

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lilmoe76

Regular Member

Joined : Apr 2006

Posts : 26

Posted 7/5/2006 1:15 PM (GMT -7)

no-i was relieved at first too (about the thought of even minor sucess) but i thought about it way too much! the thing that scared me was having something (maybe or maybe not) inserted in my heart. my family has such heart problems as it is-i just want to be careful. that is all i need on top of the headaches.

sounds awful-but if i had decided to go for it-i would be dissapointed if i didn't have the hole as well. that is when you know we become desperate! :)

thanks for the posts! i was just curious!

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