Hey folks, I'm usually on another forum here but thought I'd toss this out there and see if it rings any bells for you guys since I'm out of answers - I've had what I call classic migraines my whole life (since I was a wee toddler even) -- auras, spots, aural tunneling, dizziness, want to bury my head as close to the center of the earth as possible stuff...but about
8 years ago I started a new phase and I haven't been able to get any answers about
it. I've had MRIs, CT scans, you name it - I've had Drs say there's no tumor or pinched nerves, and also be willing to say it sounds like it could be this or that but not really...so, no dx...PLEASE, let me know if this rings any bells, I've been free of these for about
3 years and now they're back. ARG.
Ok, so here's the description...it's like there's an evil little pixie out there with an elf-sized ice pick and they just stab into the top or right side of my head and pull it back out again. The pain is blindingly intense, lasts about 30 seconds (I've had a few that lasted over 2 minutes-not fun) and then the pain is gone. I've tried imitrex when I've been having a spell of them to no avail (likewise for just about every other pain med). When they happen I get them really frequently for a significant period of time (like a few months) and then they go away again. I've done headache journals, changed foods, you name it with no success. When they happen I get another thing where it feels like the nerves on the left side of my neck get about 3 feet shorter than the ones on the right, my head jerks over, pain is intense (but again, short-lived) and thats it for a while. If I'm having the evil-pixie-ice-pick thing I'm having the neck shortening drama, but the two types of pain never happen simultaneously, its just an all or nothing kind of thing. I've noticed recently that if my legs are crossed at the ankles or knees when the pain happens and I uncross them the pain seems to go away, but since the pain is short lived anyway I'm never sure if that's it...
Anyhoo - if that rings a bell with anyone, I would appreciate any advice or suggestions...these things freak me out and I was pretty happy being without them for so long...
Thanks for reading this!
2002 - PTSD
11/2004 - Spontaneous Pneumo, rt lung
12/2004 - Spontaneous Pneumo, rt lung
1/2005 - Bullectomy & Talc Pleurodesis
5/2005 - Fibromyalgia
8/2005 - Collagenous Colitis and IBS
Lifelong - Migraine, gastric issues, peripheral numbness, insomnia (brief period of narcolepsy), RLS, super fast metabolism, rapid weight loss (and interminably slow weight gain), hand tremor.