my doctor dumped me

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AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 8/26/2006 5:02 PM (GMT -7)   
I got a call yesterday, saying the doctor i've seen for YEARS, will no longer treat my migraines, and only treat "medical conditions". I was so upset. Hes been the only doctor who will sit and talk with me, and truely listen. He's been my doctor since I was like 10 years old. He is a good man, and great doctor. I just didn't understand. So I went and sat in his office for 2 hours telling his nurse I wanted to speak to him NOW. She wouldn't let me but he did call me after hours. He talked to my mom and me for 1 1/2 hours. Apparently a doctor from an ER I recently went to for a Migraine called him and told him I was doctor shopping, etc. He wasn't given the whole story on what I had been through medically, and only saw on paper how many times I'd been to the doctor. When I finally got a chance to talk to him, it was just a whole bunch of miss communication. Its a long story, but in the end he did have a better understanding, and I had a better understand of what he was talking about. I'm just tired of being  punched (well thats what it feels like) for being sick and needing help. NOBODY knows what to do, and since they can't see anything wrong with me every body just gives up and thinks it physcologial in nature.  I won't bother you with the rest of the story. Also,
 I just quit the CP forum because some people were very rude and misunderstood what I was trying to say. They have now removed the post and tell me, maybe you didn't press submitt, even though I got several unpleasent replys(some were good too). Nobody is openmined  and just jump to conclusion that I am trying to make them feel bad, or tell them what to do. Ok...I'll stop now.
Just a vent.
Thanks, Ang

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 8/27/2006 7:21 AM (GMT -7)   
Hi AngMichelle,

Boy you are having it tough just now!! Hang in there, and as I replied on CP forum maybe you should contact Admin about your removed post - nobody needs to be treated like that with no explanation!! Peter Waite is usually very helpful in Admin!

take care

Ann x

djoyg
Regular Member


Date Joined Jul 2006
Total Posts : 139
   Posted 8/28/2006 10:50 PM (GMT -7)   
Dear AngMichelle,

I was reading and following your thread...OF COURSE you pressed submit. Before my current condition I always had made every effort possible to avoid western medicine. I rarely if ever took a tylenol. But when I was hit suddenly and severely with brutalizing unending left sided chest pain in Dec. 2003, turning a lovely shade of blue and unable to move or utter more than 2 or 3 words at a time, my pharmicutical philosophy changed rapidly. But not enough. I am still constantly under medicated and quite possibly I am big part of that equation, although due to a continuing degrading of my situation I have had to face that I NEED to do SOMETHING.
I had stopped coming to Healing Well altogether for awhile. I didn't like to see myself judging other people, but the more I read and spoke to people the more I realized how many people there were that were over medicated for there aches. The forumm title is Chronic Pain, not Chronic Ache, and I would literally have someone email me with, "But if I don't take 3 oxy my legs just ache" or, "my low back always ached until I started to use fentanyl patches". When I have made suggestions of the alternative pain options I utilize AS WELL AS my daily meds, I am ignored. Everytime. Reality is that breakthrough pain exists. Reality is that you will be in a situation of increased pain and will need to be self reliant. I noticed on the Chat nights when we went around and introduced ourselves, everyone was very chatty and supportive with each other about their neuralgias but when it came my turn and I mentioned inoperable rare embedded enhanced nerve root tumors, it was, "Who wants to be next?" I sat at my laptop speechless, and that's when I realized, for a pain forum, why is it I don't come across people with cancer pain, which is unbearably painful? I don't want to say never...I'm sure I have come across a few...but I tell you it's been far between.
Ang- I've had people write to me in a panic that they're running out of meds and the doc hasn't called back yet. They're about to leave another panicked message, this time reminding the dr. how they dread withdrawal. At which point I've written back, don't you mean severe pain? That if you run out of meds you potentially will be in severe pain? And what about the Cpers that refuse to try any type of med accept pain meds? I find that very telling. Don't you?
I fully support you and the point you were making. Come on, think about why they got their panties in a bind. Big right armed hugs, my dear...the left one is working less and less these days.
My homemade migraine treatment usually worked well for me: Coca Cola and asparin. The caffeine dialates the blood vessels, the sugar raises the blood sugar (don't get diet, get regular) and the asparin thins the blood so it flows to the brain better. When I was plagued by migraines I used to carry my little 'migraine kit' in the car with me, just in case.

Best~
d.


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 9/1/2006 12:14 AM (GMT -7)   
Thank you so much for the reply djoyv. I really needed that. I want you to know that i think about you often, and when I do send a little prayer up for you. How did that doctor who would see you go?? Any new news? Again, thank you for your repy.

djoyg
Regular Member


Date Joined Jul 2006
Total Posts : 139
   Posted 9/1/2006 11:27 PM (GMT -7)   
Dear AngMichelle,

The last few days have been such ROUGH ones that I've been putting out the word to add my name to prayer circles. Thank you so much for your thoughts and prayers.
The appt. turned out to be a waste of time. It turned out that one of the first surgeons I had consulted about 2 years ago that had ranted at me that he was "a genious, the best there is, and it's impossible to get to those tumors, if I can't do it, it can't be done!", now worked in the same office as this guy. When I went in for my consultation, I brought all of my records, films, mris with me. He apparently hadn't looked at them. Tried to tell me my problem was mild arthritis in my neck. His nurse looked like she was going to stop breathing. She kept trying to hand him reports and films, "What about this report Doctor? What about this film Doctor?" He just brushed everything away. I asked him why the rheumatologist I've been seeing for years has never noticed any arthritis? He stared at me for awhile and then said, "Maybe it's work related stress, what do you do for a living?" I told him that I'm immobilized in pain for a living. He finally acknowledged that the tumors existed, but that he believed that they were of little consequence and were not the cause of my pain, which was of unknown causes.
Next I'm switching my care to USC next week and I'm investigating a paper out of Germany regarding the exact tumors I have that have been removed successfully there.

I'm usually always upbeat and strong, but this week has just been such an overwhelming downer, my ex has been exceptionally cruel, I've had a couple of very difficult days and a couple of my kids and had a hard time...when it rains it pours.

How are you doing?
d.


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 9/2/2006 12:31 AM (GMT -7)   
Hi djoyv,

I have just added you to my prayer list!!! What you are going through must be intollerable!!! Yes I agree you definitely need to change your Doctor and find someone who will take you seriously!! - and very soon!!!!

Please let us know how you get on as no-one should have to go through this amount of pain alone!!! You can be assured of my thoughts and prayers!

take care

Ann

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 9/2/2006 12:34 AM (GMT -7)   
Hi AngMichelle,

Sorry to hijack your thread - I am concerned for you too!! How are you now? My thoughts and prayers are with you too!

take care

Ann

djoyg
Regular Member


Date Joined Jul 2006
Total Posts : 139
   Posted 9/2/2006 6:46 PM (GMT -7)   
Dear Ann,

Thank you so much! I'm trying so hard to remain optimistic about USC. I don't want to have to travel and leave my children just to find someone that knows what to do. It's not just a matter of finding someone that can help with the level of pain, what I'm really hoping for is to find someone that will know what to do about the tumors. How to remove them. Surgery, radiation...whatever, ideally that would resolve the situation.

Again, I'm so grateful for your prayers and I will keep you posted.
d.

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