someone else having the same problem with Topamax

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New Member

Date Joined Aug 2006
Total Posts : 2
   Posted 8/30/2006 7:38 AM (GMT -6)   
Hi ... I am new to discussion rooms, but thought maybe someone else was having the same problem with Topamax as I am. I have been on it now for 2yrs. and it has been wonderful at stopping my seizures, however, I am very tall and now have dropped in weight to 125 pounds. I have sever lower back pain, and my abdomen is constantly swollen. At times I feel off balance (like when your blood sugar drops), it is very hot and humid where I live and I don't know if that with the medicone could be the cause, but when that happens my pupils rapidly get bigger and smaller. Also, well how to say it discretly, I have an acidy smell, which concerns me because I know that metabolic acidosis can be a major side affect. However when I had my blood work done, my doc said that I was only dehydrated and needed to take vitamin b., but that does not seem to be working. These side effects did not become apparent to me until I started losing so much weight. Any advice please. Thank you for reading my story.

Veteran Member

Date Joined Jan 2006
Total Posts : 1308
   Posted 8/30/2006 10:07 AM (GMT -6)   
Hi tdinal,

Welcome to Healing Well. Unfortunately I cannot comment on the Topamax as I have not had any experience with it, but I know others here have, and am sure they will be along to give their point of view.

You mention that you have seizures, and there is a forum here that deals with epilepsy that I am sure you will find helpful. You did not state whether you had headaches/migraine.

Sorry I cannot be of any more help, take care


New Member

Date Joined Aug 2006
Total Posts : 2
   Posted 9/1/2006 8:22 AM (GMT -6)   
I apolagize, I didn't realize I am in the wrong forum (new to this), no I do not have migraines. I will check out the other forum. Thank you for the response in directing me where I need to go.
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