Just dx'd with TMJ

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Melanie611
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 9/6/2006 1:33 AM (GMT -7)   
Hi,
 
After 6 weeks of incredible stress, won't go into the details, but trust me, these past weeks have been horrible, devastating.  So, I went to my dr., still having headaches, they had gone away, but after what happened to me and my husband they came back.  My neck and shoulders are always so, so tight.  Dr. said they are as tight as a flagpole.  Had that MRI in March of this year and I'm still scared something is there and that it's just growing.
Anyway, dr. did a test on me for TMJ and it was positive.  So I researched the symptoms, and I have everyone of them.  I am a terrible teeth clencher, but I always thought that only people who had TMJ ground their teeth in their sleep.  Guess that's not true.  Does anybody else have TMJ, and if so, what are your symptoms.  I'm sooooooooooo tired of having headaches all the time.  I also have sinus headaches everyday, I know they're sinus because of all the drainage, sore throat and sneezing, plus all the pressure behind my cheek bones and forehead.
Any input would be appreciated.
Thanks in advance,
 
Melanie

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 9/7/2006 9:40 PM (GMT -7)   
I have had TMJ and Migraines for years. I spent thousands on different splints supposed to help the clenching, but i clench so hard, I've broken them in half. I also had Chronic Jaw Dislocations and have had 2 surgeries since december. We were really hoping the surgery would help the HA as well, but they haven't changed at all. BUT, for people with tention ha, TMJ treatment seems to be helpfull. There is an injection they can give right into the jaw joint that helps with pain, muscle spasms. I never had it, but I hear good things about it. what helped me most was semi-soft diet, Heat( wet rag microwaved wrapped in seranwrap, then put in a towel),some times ice, and mostly when your awake make a conscienous(sp?) effort not to clentch. I find myself still going it a lot. A splint may be helpful to you, but find a GOOD tmj doc that sends your molds to a GOOD lab to make it. I had a few lemons...and they are expensive. The guards you buy at wal-mart, NO GOOD. They were also considering BOTOX before I had my dislocations. There are oral surgeons that specialize in TMJ and most will not do surgery. Usually TMJ surgery is a LAST LAST resort. (I had it bc of dislocations.) but the TMJ docs are helpfull in the treatment. Good luck to you.

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 9/10/2006 3:39 PM (GMT -7)   
Hey guys,
I have wicked bouts of TMJ, usually during times of extreme stress.  I never "grind" my teeth, but I clench my jaw, usually sucking on my tongue and teeth.  I do it in the daytime (which I am aware of), and probably at night also.  In addition to affecting the jaw and neck muscles, it also puts pressure on my teeth, so I usually end up needing dental work.  If I get dental work done first, a bout of TMJ is on the way, and will last for weeks.  The pain is usually so bad that I need Lortab/Lorcet or similar pain killer, then a muscle relaxer also works to loosen up the jaw and neck muscles. 
 
I am in the throws of a TMJ attack right now.  After the pain medication and muscle relaxers are gone, and I still had the pain in my teeth and  neck/jaw muscles, I got referred to a TMJ specialist by my dentist.  He diagnosed that my problem is less jaw malformation, and more muscle related.  He said that he could operate on the jaw (the right side pops and clicks), but that I would probably do better having physical therapy. 
 
Thus, I am now in the middle of having physical therapy sessions for my TMJ.  I have two sessions a week where the therapist twists and stretches my neck, shoulders and jaw muscles.  After all the weird stretching, then I get electronic heat and muscle stimulation for about twenty minutes.  Being hooked up to the electric stim machine feels pretty good, but I'm not sure it's actually doing a lot of good for my TMJ.  However, I would recommend having the physical therapy 100% before having a mouth guard or splint made, since those really are a waste of time. 
 
I have to go to the dentist again on Tuesday, so whatever progress I've made will just be undone.  SSDD.
 
Wish me luck,
Leigh Ann cool

Edit - I forgot to mention that my TMJ is a major trigger for my migraine attacks.  However, I have now been labeled a "drug seeker" since I have received narcotic pain prescriptions (LORTAB, LORCET) from both my dentist and my PCP, as well as getting pain shots at the ER for major migraine atttacks.  Our town is now on a unified database, so it shows how many times I've received narcotics in the last year.  Being labeled as a "drug seeker", I can't even get a Narcotic pain shot at the ER when I get a serious migraine attack.  I've been turned away untreated the last three times I've sought relief for a bad migraine at the ER, and no doctor will prescribe any narcotic pain medication for me anymore.  I've also now been referred to the local drug rehab center for evaluation and treatment.  My legitimate health problems now have me lumped in with the local crackheads and heroin addicts.  Isn't that just lovely.  I'm so screwed. sad


"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett

Post Edited (CRANKY 1) : 9/10/2006 5:05:52 PM (GMT-6)


Melanie611
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 10/16/2006 9:15 PM (GMT -7)   

Hi CRANKY,

I just read your post about TMJ, and I was particularly interested in your last paragraph about how you've been labeled a "drug seeker" because of your headaches.  You'll never know how sorry I feel for you about that.  Right after my Mother died in 1999, I made the horrible mistake of marrying a man whom I thought was decent, and turned out to be a monster.  He's one of those people who've caused people like you and I to have to battle for medication that we truly need, and it really makes me mad.  He'd go to my dr. and get hydrocodone and sell them for 10 dollars a pill, thus making 600 dollars per bottle.  I told my dr. about him and he cut him off.  He stole my lorazepam to give to his mother, he bought narcotics off the street, just so she could get high.  And everytime I need to get my hydrocodone filled, I go through literal hell, even though my dr. knows that I really, really need them because of my back and left knee.  So, I sympathize with you, and I'm so sorry that you have to suffer because of people like him.  There's another woman in the city that I live in that gets hydrocodone from my dr. also, and she too sells them, I turned her in too, but he keeps right on giving them to her, no questions asked.  But if I'm one day early, I have to beg and plead with him and he knows how much pain I'm in all the time.

I'm truly sorry that you have been labeled that.  I'm truly sorry that you have to suffer because of people that are just seeking a high and I will keep you in my thoughts and prayers.

Melanie


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/16/2006 9:46 PM (GMT -7)   
Melanie,
Your post caught my eye and I wanted to ask if your doctor has considered fibromyalgia. The stiff shoulder thing along with the TMJ is classic fibro. Not trying to diagnose here, just want to help.

Also, for the TMJ, you can often get your doctor to prescribe Physical Therapy and the therapist can teach you the correct massages and heat treatments for self treating at home. My daughter has TMJ and did this. Just for the record, the TMJ is doing fine... but she still has migraines.

If you do have fibro, the stiffness will probably move down into your arms, back, hips and legs. The treatment right now is antidepressants to raise your seratonin levels, mild pain killers and gentle exercise along with a big dose of 'grin a bear it!' Hope you don't have fibro... It stinks bigtime!
~ Jeannie

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross


hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 10/16/2006 10:22 PM (GMT -7)   
Do you have to have jaw pain to suffer from TMJ related migraine and neck/shoulder pain? My doctors chalk EVERYTHING up to stress. I have been down the path of TMJ because my jaw pops and my teeth hurt from time to time but I also suffer from depression/anxiety and cervical disk degeneration. I have to make a concious effort all day to keep my jaw relaxed. I do this by making sure that my tongue is resting against my teeth. Try it. I don't have the $ for a custom mouthguard and can't stand to have those bulky ones in my mouth.

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 10/17/2006 3:09 AM (GMT -7)   
Hey guys,
Well, it's been over a month now, and I still haven't gotten an appointment to see the doctor at the "detox" center.  My PCP office can't seem to get my records copied and sent to him.  He should have received them last week, but I haven't heard from him yet.  My TMJ is worse than ever, having had another dentist appointment, and the migraines are running rampant.  I found a brief reprieve by going to the ER in the next town, but after four visits, they will not treat me anymore either.  I have put out an emergency call to a friend of the family who designs dental appliances to get a referral to another dentist.  Hopefully, I can talk to him tomorrow.  My current dentist is lousy.  He has put a filling in my back left molar four times now I think, and it has disintigrated again.  I've been trying for almost a week to get my PCP to refill my muscle relaxer prescription without success.  I'm only getting about two hours of sleep a night, the rest of the time I sit and suffer.  My entire mouth just throbs and I've resorted to using Ambesol on all my teeth and gums for brief reprieves.  I keep getting sick to my stomach because I invariably end up swallowing a bunch of the stuff.  My stomach is totally trashed since I'm trying to get by using Ibuprofen and Excedrin.  They help some, but I'm just so miserable, there doesn't seem to be any end in sight.  I think I've got a referral to a pain clinic at the University of Virginia, but I can't seem to get a date lined up yet.  Will give you another progress report when something happens.
 
Be well (or at least, better than me),
Leigh Ann cool
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett


ttwarrior1
Regular Member


Date Joined Sep 2006
Total Posts : 261
   Posted 10/17/2006 1:38 PM (GMT -7)   
can you have tmj with no pain in the jaw, teeth, or mouth?

hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 10/17/2006 2:03 PM (GMT -7)   
Hi Leigh Ann, Sorry you are suffering so. Have you tried hot washcloths on your jaw for just a little bit of relief and comfort?
Talk2Kel 
DX: chronic migraine, cervical degeneration, depression/anxiety 
RX: Wellbutrin, Lexapro, Soma, Immitrex 
"You don't find out that God is all you've got until God is all you've got."


TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 10/23/2006 3:41 PM (GMT -7)   
I'm sorry for all of you who are suffering from migrains and tmj. I get headaches all the time-migrains, sinus, hormonal -everything seems to end in a headache. a couple of years ago I was having horrible earaches and pain in my jaw. an ent dr dx me with tmj (also dx my husband who hasn't had any pain what so ever). this summer i was also experiencing dizziness, as I was researching what it could be, I came across menieire's disease which comes from the inner ear. among other things,it causes headaches, ringing in the ears. also I read that alot of menieirs patients were also dx with tmj. unfortunatly my problems went beyond that. But i think those who have tmj might want to check into that and fibro. I hope you all find relief and answers.

isisgdss9
New Member


Date Joined Oct 2006
Total Posts : 5
   Posted 10/24/2006 12:18 AM (GMT -7)   
I have TMJ as well. I clench my jaw all night and part of the day. I can willingly crack my jaw and can't open my mouth very fast. Sometimes when I eat I hear a tiny poping. When on an airplane I have to be careful to stick my jaw out so the pressure can adjust itself. If I don't my ear drums could explode. This is because my jaw blocks my ear canal; sometimes my right ear depressurizes and everythins sounds all muffled. I wear a retainer at night and my ortho made it thicker so as to act lick a night guard. I've been told by my doctor and my dentist that my migraines and tmj are unrelated, but now I'm getting a new kind of headache so I think I'll go back when I move home. I also have severly stuff shoulders and a messed up back. I think they all tie in together.

PHYSICAL THERAPY is all I can say. I had knee problems and they were fixed within 1 month. The body can do wonderous things if pointed in the right direction.

MVanessa
Regular Member


Date Joined Aug 2006
Total Posts : 24
   Posted 11/30/2006 9:38 PM (GMT -7)   

I have tmj pretty bad.  Both joints are damaged and dislocated.  I wear a splint 24 hrs a day, and it is constantly breaking.  I never know if my headaches are sinus, migraine or tmj tension.  Not sure where to go with it anymore.  But have a headache every day.

 

Monika


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 11/30/2006 10:35 PM (GMT -7)   
Hey Guys,
 
Just wanted to update you on my TMJ problem/migraines.  My physical therapist stopped my treatments, since I kept having to go back to that crappy dentist repeatedly.  I got a referral from and old friend, who sent me to the best dentist I've ever met.  Apparently, since my previous dentist started working on me about a year ago, the number of cavities has doubled.  I have cavities in almost all my teeth now.  That dentist just kept fixing the same teeth, because his fillings kept falling out.  I think he has charged me $4000 out of pocket, since I have no dental insurance.
 
My new dentist is fantastic.  He's x-ray'd me twice, done some work on me to take care of some EXPOSED NERVES, and put me on pennicillin to kill the infections in the roots of my teeth.  My former dentist didn't seem to be bothered or even see my exposed roots, no matter how much I told him they hurt.  I've also been on Robaxin, a muscle relaxer, to try to keep my TMJ pain down, and help with my migraines.  It hasn't been really effective, but has helped some.  I can't do the heat/cold thing 'cuz that will send me directly into a migraine.  The muscle pain/tension from your jaw is caused by inflamation of the teeth clinching or whatever you do to inflame the jaw muscles.  Mine is combination of having my jaw streched during dental visits, and I catch myself sucking in on my cheeks when my teeth hurt.  This inflamation can work its way down into the neck and shoulders.
 
Anyway, my new dentist hasn't even charged me a penny for all the work he's done already.  In order to solve my problem, I've got to get all the work on my teeth done at the same time.  It took three weeks to get an appointment, but next Wednesday he has set aside the whole day for me.  He'll start in the morning and keep working until everything is fixed.  I'll get my cavities filled, but if I need a root canal, he's just going to pull the tooth.  I'll probably end up with a particial plate on the bottom of my mouth.  The best part is that it's only going to cost about half of what the bad dentist already charged.  I'm going to pursue a refund from my old dentist, or possibly take him to small claims court.
 
Hopefully, my TMJ should be gone pretty soon.  Let me know how you guys are doing.
 
Leigh Ann cool

"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 18, 2017 3:26 PM (GMT -7)
There are a total of 2,906,841 posts in 319,001 threads.
View Active Threads


Who's Online
This forum has 158345 registered members. Please welcome our newest member, Twinsdog.
387 Guest(s), 15 Registered Member(s) are currently online.  Details
KB69, Africa99, PeppermintTea, 07kr5, mibella, SeanL88, Serenity Now, Lymess, 1success, Missouri, Mark FW, tata212, gabybee, OriolCarol, Frostypro