why so downcast oh my soul

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Veteran Member

Date Joined Apr 2006
Total Posts : 932
   Posted 9/7/2006 11:50 PM (GMT -6)   
~well, had another killer of a migraine this week. Ended up in noisy walk-in for hours, but did get a shot(without any bad looks or questions). Slept for like a whole day, and its gone. I'm just so tired. This is my routine every week. Doctors don't even know what to do anymore and they don't want to give me pain meds, which I understand, but then after hours hanging over the toilet, and sleeping on the bathroom floor holding my head and in the fetal position, I want a shot. I know its not good for me to get a shot every week. I guess the Keppra they put me on after Topamax(kidney stones and congnive changes) isn't working. THe Topamax did wonders for the migraines but I couldn't take the side effects. My neuro. says the only thing else he knows to do is send me to the Diamond Clinic(which I cannot afford). My PCP wants me to go to counciling. I had an ER doc. call my PCP saying he thought I was drug seeker. spent hourts explaining to PCP, things much better now, but I still have been labeled other places now.... Its so frustrating. I want to go to college, I want friends and a life. I don't want drugs, pain, ect. No one in the medical field seems to get it. They just think since they can't see anything, its not ALL physical in nature.
Sorry for the rant, I'm just so tired. this is all really getting to me now. As you may know from other post, I have had a bad last few months, and nothing seems to be getting better. I can't sleep, can't stay awake during the day, can't function, can only work 4 hrs a day and that is hard, I've been trying to exercise but everytime I do I get a h/a. Ive tried everything. I just feel alone in this(here at home I know i'm not alone on here) and that everyone, even my docs are just giving up on me. I'm not allowed to give up, so why can they??

Veteran Member

Date Joined Jan 2006
Total Posts : 1308
   Posted 9/8/2006 1:50 AM (GMT -6)   
AngMichelle, I am so sorry you are still having such a tough time. Do you have MSN or Yahoo messenger? If you have either one or both, and you would feel happy to pass them on to me, please email me with your addy's for them, I would love a chance to talk to you properly! But don't worry I understand if you don't want to!

Just my opinion, but I think you would find it very helpful to see a counsellor, and wish very much there was a way you could get to afford the Diamond Clinic.

I know everything in you just now wants to give up - been there!! But hang in there girl, keep fighting and you will get there eventually.

lots of love and ((((hugs))))


Regular Member

Date Joined Oct 2006
Total Posts : 67
   Posted 10/25/2006 6:34 PM (GMT -6)   
Oh my gosh.
Your story sounds so much like me.
I haven't been labled a drug seeker though and i hope i never am.
But i am scared of htat every day.
My head hurts ALL THE TIME.
Mine are tension headaches mostly i think.
I've been to a bunch of doctors.
I've gone to physical therapy.
Tried a bunch of meds.
I just started going to a councelor.  My doctor said i have to talk to someone.
I'm on Cymbalta now.
Most medicines don't work for my headaches.
You know what helps just a little bit?  Vicodin or Tramadol.
But i don't get it regulary.
Finally today, my doctor said that a second opinion w/ a neuroligist that i want to see will be fine.  He's going to give me the referral.
He gave me Fiorcet today.
I understand about the exercise too.  My doctor tells me to walk at least 30 min a day now.
When i do i get a really bad headache, but i'm going to keep trying and i have to write everything down too.
I can't wait to see the neurologist.  I hope they can help me more.
I hope you can get into that clinic too and i hope things get better for you soon.
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